AB 116 — Requires the provision of information and referrals concerning Down syndrome under certain circumstances. (BDR 40-569)

(ReprintedAssembly withBill amendmentsNo. adopted on April 17, 2023) FIRST REPRINT A.B.

116116–Assemblymen ABrown-May; SSEMBLY BILL N O .

116–AGonzález, SSEMBLYMENGorelow, BROWNGray, -MNewby, AY;Nguyen, Orentlicher, Peters, Taylor and Thomas CHAPTER..........

G ONZÁLEZ , G ORELOW , G RAY , N EWBY , N GUYEN , O RENTLICHER , PETERS , AYLOR AND THOMAS PREFILED FEBRUARY 3, 2023 ____________ Referred to Committee on Health and Human Services SUMMARY—Requires the provision of information and referrals concerning Down syndrome under certain circumstances.

(BDR 40-569) FISCAL NOTE:

Effect on Local Government:

No.

Effect on the State:

No.

~ EXPLANATION – Matter in bolded italics is new;

matter between brackets [omitted material] is material to be omitted.

LegislativeLegExisting Counsel’slaw Digest:requires the testing of newborn children and persons who are pregnant to detect certain disorders and conditions.

Existing(NRS law442.010-442.020, requires the testing of newborn children and persons who are 442.500-442.700) Existing law provides for the dissemination of information concerning certain conditions affecting a person who is pregnant and newborn children.

(NRS 442.340, 442.385, 442.390, 442.590, 442.660) This bill requires a provider of health care or other services or midwife who provides prenatal care or pediatric care to provide certain information concerning Down syndrome and care or support services in the community for persons with Down syndrome to:

(1) a person who is pregnant and has received a positive test result from a prenatal test for Down syndrome if the person requests such information;

or (2) the parent ortestor guardian of a child with Down syndrome.

This bill also requires such a provider or midwife to refer such a person to appropriate support services in the community when necessary.

-EXPLANATION *AB116_R1* – 2Matter –in THEbolded PEOPLEitalics OFis THEnew; STATE OF NEVADA, REPRESENTED IN SENATE AND ASSEMBLY, DO ENACT AS FOLLOWS:

matter between brackets [omitted material] is material to be omitted.

THE PEOPLE OF THE STATE OF NEVADA, REPRESENTED IN SENATE AND ASSEMBLY, DO ENACT AS FOLLOWS:

Upon receipt of a positive test result from a postnatal test for Down syndrome performed on a child or if a person chooses to receive information concerning Down syndrome pursuant to subsection 1, a provider of health care or other services or a - 82nd Session (2023) – 2 – midwife who provides prenatal care or pediatric care shall provide the person who is pregnant or the parent or guardian of the child, as applicable, with:

(a) Written information concerning Down syndrome that is current and based on peer-reviewed medical literature and research.

(b) Any necessary referral to support services in the community for people with Down syndrome and parents or guardians of such persons, including, without limitation, early intervention, resource centers, hotlines and other education and sup2.rtThe Department shall post on an Internet website maintained by the Department a list of support servicesprograms. available in the community for people with Down syndrome and parents or guardians of such persons in different areas of this State.

2.

The Department shall post on an Internet website maintained by the Department a list of support services available in the community for people with Down syndrome and parents or guardians of such persons in different areas of this State.

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