Washington 2025-2026 Regular Session Status: In Committee Bipartisan · 7 D · 6 R cosponsors
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SB 5064 — Creating an advisory council on rare diseases.

Last action — By resolution, reintroduced and retained in present status.

  1. ✓
    Introduced
  2. 2
    In Committee
  3. 3
    Passed Senate
  4. 4
    Passed House
  5. 5
    To Executive
  6. 6
    Enacted

This bill is in committee in the Senate. Introduced December 16, 2024. It must pass committee before a floor vote.

Next likely step: a committee vote, then a floor vote in the Senate.

Odds of enactment

Low chance

Based on the sponsor, cosponsors, and committee posture, this bill has a low chance of becoming law.

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A statistical estimate from our own model of past outcomes — an insight, not a guarantee. Policymaking is volatile.

Prognosis

Advancing 44% · high confidence

  • In Committee

    Current position in the legislative process.

  • 13 sponsors

    1 primary, 12 co-sponsors signed on.

  • Bipartisan support

    Sponsored across 2 parties (7 D · 6 R) — cross-party backing.

  • Spreading across states

    Near-identical bills in 1 other state — cross-state momentum.

Based on stage, sponsorship breadth, committee status, recorded votes, and cross-state momentum — a description of the observable signals, not a prediction.

Bill Text

What changed in the latest version

66 added · 67 removed

Plain-language change summary

The recent changes to SB 5064 clarify that the four patient representatives on the council must specifically be Washington residents. This change ensures that the voices of local patients, particularly those living with rare diseases, will be included in the decision-making process, making it more relevant to state residents. Additionally, the updated language emphasizes the importance of having representatives who truly understand the needs and challenges faced by patients within the state.

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S-1000.1 SUBSTITUTE SENATE BILL 5064 State of Washington 69th Legislature 2025 Regular Session By Senate Health & Long-Term Care (originally sponsored by Senators Liias, Holy, Stanford, Wagoner, Lovick, Gildon, Cleveland, Cortes, Fortunato, Harris, Nobles, Riccelli, and Warnick) READ FIRST TIME 01/31/25.
S-0233.1 SENATE BILL 5064 State of Washington 69th Legislature 2025 Regular Session By Senators Liias, Holy, Stanford, Wagoner, Lovick, Gildon, Cleveland, Cortes, Fortunato, Harris, Nobles, Riccelli, and Warnick Prefiled 12/16/24.
Read first time 01/13/25.
Referred to Committee on Health & Long-Term Care.
1 SSB 5064 (1) An advisory council on rare diseases is established within the University of Washington school of medicine to advise the secretary of health on research, diagnosis, treatment, and education related to rare diseases.
1 SB 5064 (1) An advisory council on rare diseases is established within the University of Washington school of medicine to advise the secretary of health on research, diagnosis, treatment, and education related to rare diseases.
(b) Four individuals, who are Washington residents, representing patients, including:
(b) Four individuals representing patients, including:
A vacancy on the council must be filled in the same manner as the original p.
A vacancy on the council must be filled in the same manner as the original appointment.
2 SSB 5064 appointment.
An individual appointed to fill a vacancy created other p.
An individual appointed to fill a vacancy created other than by expiration of a term must be appointed for the unexpired term of the member whom the individual is to succeed in the same manner as the original appointment.
2 SB 5064 than by expiration of a term must be appointed for the unexpired term of the member whom the individual is to succeed in the same manner as the original appointment.
3 SSB 5064 diagnosis, treatment, and access to care for persons living with a rare disease, including support for their families and caregivers;
3 SB 5064 diagnosis, treatment, and access to care for persons living with a rare disease, including support for their families and caregivers;
4 SSB 5064
4 SB 5064
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Action History

  1. By resolution, reintroduced and retained in present status.

  2. Public hearing in the Senate Committee on Ways & Means at 4:00 PM.

  3. Referred to Ways & Means.

  4. And refer to Ways & Means.

  5. HLTC - Majority; 1st substitute bill be substituted, do pass.

  6. Executive action taken in the Senate Committee on Health & Long-Term Care at 8:00 AM.

  7. Public hearing in the Senate Committee on Health & Long-Term Care at 8:00 AM.

  8. First reading, referred to Health & Long-Term Care.

  9. Prefiled for introduction.

Sponsors

Sponsorship breakdown

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1 sponsors · 12 co-sponsors · 138 not signed on

Sponsors (1)

Co-sponsors (12)

Not signed on (138)

138 members have not signed on to this bill.

Show all 138 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Subjects

healthcare health-insurance

Similar bills in other states

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Frequently asked questions

Who sponsors SB 5064?
SB 5064 is sponsored by Judy Warnick (Republican), Marcus Riccelli (Democrat), T'wina Nobles (Democrat), Paul Harris (Republican), Phil Fortunato (Republican), Annette Cleveland (Democrat), Chris Gildon (Republican), John Lovick (Democrat), Keith Wagoner (Republican), Derek Stanford (Democrat), Jeff Holy (Republican), Marko Liias (Democrat), and Adrian Cortes (Democrat).
What is the current status of SB 5064?
This bill is in committee in the Senate. Introduced December 16, 2024. It must pass committee before a floor vote.
Where can I track SB 5064?
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Last checked for changes 3 months ago · updated continuously

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