SB 1684 — Parkinson’s Disease Registry

Florida Senate - 2026 CS for SB 1684 By Senatorthe CalatayudAppropriations 38-01287-26Committee 20261684__on AHealth billand toHuman beServices; entitled An act relating to the Parkinson’s Disease Registry;

and Senator Calatayud 603-02961-26 20261684c1 A bill to be entitled An act relating to the Parkinson’s disease registry;

creating ss.

458.352, 459.075, and 464.0124, F.S.;

requiring physicians, osteopathic physicians, and advanced practice registered nurses, respectively, to report certain information to the Parkinson’s disease registry;

providing limited liability for physicians and advanced practice registered nurses under certain circumstances;

definingrevising the termmembership “department”;of the Parkinson’s Disease Research Board;

subject to a specific appropriation, requiring thethat Departmentannual reports of Health to contract with the Consortiumboard forinclude Parkinson’sspecified Diseaseinformation Researchbeginning withinon the University of South Florida for a specified purpose;date;

requiring the departmentInstitute contractfor withParkinson’s Disease at the consortiumUniversity of South Florida, subject to requireappropriation, useto ofestablish aand nationallymaintain recognizeda platformstatewide toParkinson’s collectdisease dataregistry for thespecified registry;purposes;

beginningproviding onrequirements afor specified date, requiring physicians who diagnose or treat a patient with Parkinson’s disease to report specified information to the registry;

requiring the department to adopt certain rulesphysicians inand consultationadvanced withpractice theregistered Parkinson’snurses Diseaseto Researchreport Board,specified theinformation Boardto of Medicine, and the Boardregistry ofregularly; Osteopathic Medicine;

requiring physiciansthe toinstitute, notifybeginning patientson orallya andspecified indate, writingto ofcreate specifiedand informationmaintain beforea submittingpublic reportswebsite dedicated solely to the registry;

providingspecifying proceduresrequirements for a patient to opt out of the registry;website;

requiring that the Parkinson’swebsite Diseasebe Researchupdated Boardby toa submitspecified quarterlydate reportsand toannually thethereafter; department;

requiring the department to submit annual reports to the Governor and the Legislature;

providing requirements for the reports;

requiring the department to publish certain information and the annual reports on its website;

providing physicians immunity from liability and disciplinary action under certain circumstances;

PageBe 1It Enacted by the Legislature of 4the CODING:State of Florida:

Section 1.

Section 458.352, Florida Statutes, is created to Page 1 of 5 CODING:

Florida Senate - 2026 CS for SB 1684 38-01287-26603-02961-26 20261684__20261684c1 Beread: It Enacted by the Legislature of the State of Florida:

Section458.352 1.Parkinson’s disease registry;

Subsectionreporting (3)requirement.— of(1) sectionBeginning 1004.4352,January Florida1, Statutes,2027, iseach amended,physician andwho subsectiondiagnoses (5)or istreats addeda patient for Parkinson’s disease shall report to thatthe section,statewide Parkinson’s disease registry, established pursuant to read:s.

1004.43521004.4352, Parkinson’sinformation diseasecontaining research.—nationally (3)recognized DEFINITIONS.—AsParkinson’s useddisease inperformance thismeasures. section, the term:

(a)(2) “Board”A meansliability of any kind or character for damages or other relief may not arise or be enforced against a physician by reason of having provided such information to the statewide Parkinson’s Diseasedisease Researchregistry. Board.

(b)Section “Consortium”2. means the Consortium for Parkinson’s Disease Research.

(c)Section “Department”459.075, meansFlorida theStatutes, Departmentis ofcreated Health.to read:

(5)459.075 PARKINSON’S DISEASE REGISTRY.—Subject to a specific appropriation, the department shall contract with the consortium to establish and maintain a Parkinson’s Disease Registry to ensure that the Parkinson’s disease dataregistry; required to be submitted under paragraph (a) is maintained and available for use for research to advance therapies, improve patient outcomes, and find potential cures for the disease.

Thereporting departmentrequirement.— contract(1) mustBeginning requireJanuary the1, consortium2027, toeach usephysician who diagnoses or treats a nationallypatient recognizedfor platformParkinson’s disease shall report to collectthe datastatewide fromParkinson’s physiciansdisease asregistry, requiredestablished inpursuant paragraphto (a).s.

(a)1004.4352, Beginninginformation Januarycontaining 1,nationally 2027,recognized each physician licensed under chapter 458 or chapter 459 who diagnoses or treats a patient with Parkinson’s disease shallperformance reportmeasures. to the registry information specified by the department, by rule, which indicates patient demographics, diagnosis, stage of disease, medical history, any laboratory data, the methods of diagnosis or treatment used, and any other information the board Page 2 of 4 CODING:

(2) A liability of any kind or character for damages or other relief may not arise or be enforced against a physician by reason of having provided such information to the statewide Parkinson’s disease registry.

Section 3.

Section 464.0124, Florida Statutes, is created to read:

464.0124 Parkinson’s disease registry;

advanced practice registered nurse reporting requirement.— Page 2 of 5 CODING:

Florida Senate - 2026 CS for SB 1684 38-01287-26603-02961-26 20261684__20261684c1 recommends(1) Beginning January 1, 2027, each advanced practice registered nurse who diagnoses or treats a patient for inclusionParkinson’s indisease shall report to the registry.statewide Parkinson’s disease registry, established pursuant to s.

In1004.4352, adoptinginformation rulescontaining undernationally thisrecognized paragraph,Parkinson’s thedisease departmentperformance shallmeasures. consult with the board, the Board of Medicine, and the Board of Osteopathic Medicine.

(b)(2) A physicianliability whoof diagnosesany akind patientor withcharacter Parkinson’sfor diseasedamages shallor notifyother therelief patientmay orallynot andarise inor writingbe aboutenforced theagainst registryan andadvanced thepractice requiredregistered reportingnurse underby thisreason subsection.of having provided such information to the statewide Parkinson’s disease registry.

IfSection a4. patient does not want his or her personal identifying information included in the registry, the physician must certify in writing that the patient has been notified of the registry, provided information about the operation of the registry, and afforded the opportunity to ask questions, but wishes to opt out of the registry.