pa-56-27-948: Newborn Screening and Follow-Up Technical Advisory Board meeting (Part II)

Summary

The Newborn Screening and Follow-Up Technical Advisory Board (Board), established under the Newborn Child Testing Act (35 P.S. §§ 621 625), will hold a public meeting on Thursday, July 23, 2026, from 10 a.m. until 12 p.m. The meeting will be conducted in person at the Health and Human Services Building, 8th Floor, Room 812, 625 Forster Street, Harrisburg, PA 17120. Individuals must RSVP no later than Friday, July 10, 2026, if they plan to attend in person. Individuals who plan to join by means of teleconference should use https://bit.ly/4uIV7N9. The dial-in number is (267) 332-8737 and the conference access ID is 948451110#. The agenda will include discussions about the Board member terms; updates from the Bureau of Family Health; and updates from the Lysosomal Storage Disorders/X-ALD, Cystic Fibrosis, Hemoglobinopathy, Critical Congenital Heart Defects subcommittees and the New Conditions workgroup. Program staff will provide data for each subcommittee/workgroup update as needed. For additional information or for persons with a disability who wish to attend the meeting and require an auxiliary aid, service or other accommodation to do so, contact Brandon Weber, Public Health Program Administrator, Division of Newborn Screening and Genetics, at (717) 783-8143. For persons who need assistance with speech and/or deaf or hard of hearing persons, contact the Pennsylvania Hamilton Relay Service at (800) 654-5984 (TDD users) or (800) 654-5988 (voice users). This meeting is...

The agency’s own summary, as published.