2025-23246: NIH Controlled-Access Data Policy and Proposed Revisions to NIH Genomic Data Sharing Policy
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The National Institutes of Health (NIH) is requesting public input on its proposal to establish harmonized and transparent policy requirements for protecting human participant research data. Specifically, NIH proposes (1) establishing policy requirements for which data should be controlled-access under NIH data sharing policies, and (2) revising the NIH Genomic Data Sharing Policy to simplify and harmonize requirements.
The agency’s own summary, as published.
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