2026-08239: Proposed Data Collection Submitted for Public Comment and Recommendations
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The Centers for Disease Control and Prevention (CDC), as part of its continuing effort to reduce public burden and maximize the utility of government information, invites the general public and other federal agencies the opportunity to comment on a proposed information collection, as required by the Paperwork Reduction Act of 1995. This notice invites comment on a proposed information collection project titled Focus on Advancing Support and Transition with the Fragile X Online Registry With Accessible Database (FAST FORWARD). This surveillance project will allow CDC to better understand health outcomes, educational and social outcomes and gaps in related services (education, work, well-being, etc.), and barriers to and differences in receipt of healthcare and other services among people with fragile X syndrome (FXS).
The agency’s own summary, as published.
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