HJM 7 — STUDY FUNDING TO RESEARCH CAVERNOUS ANGIOMA

HOUSEA JOINT MEMORIAL 7REQUESTING 54THTHE LEGISLATURE-DEPARTMENT STATEOF HEALTH AND THE BOARD OF REGENTS OF THE UNIVERSITY OF NEW MEXICO -TO FIRSTAPPOINT SESSIO,A 2019COMMITTEE INTRODUCEDTO BYSTUDY MiguelFUNDING P.LEVELS AND NEW SOURCES OF FUNDING TO SUPPORT RESEARCH ON CAVERNOUS ANGIOMA, A DISEASE THAT DISPROPORTIONATELY AFFECTS HISPANIC NEW MEXICANS.

Garcia 6 8 10WHEREAS, Acavernous JOINTangioma MEMORIALis REQUESTINGa THEdevastating DEPARTMENTblood OFvessel HEALTHdisease ANDthat THEhas BOARDenormous OFconsequences REGENTSfor OFthose THEaffected UNIVERSITYand OFtheir NEWfamilies; MEXICO TO APPOINT A COMMITTEE TO STUDY FUNDING LEVELS AND NEW SOURCES OF FUNDING TO SUPPORT RESEARCH ON CAVERNOUS ANGIOMA, A DISEASE THAT DISPROPORTIONATELY AFFECTS HISPANIC NEW MEXICANS.

eand t 17 WHEREAS, cavernous angiomaangiomas isare aformations devastatingin bloodthe vesselbrain w l n d 18 disease that hascannot enormousbe consequencesdetected foreasily thoseexcept affectedthrough andvery =specific =medical 19scans; a l their families;

and i a e r 20 WHEREAS, cavernous angiomas areappear formationsto in the brain a t m m 21 that cannot be detectedpassed easilyfrom exceptone throughgeneration veryto specificthe dnext; r e 22 medical scans;

and cWHEREAS, ethose swith ka 23 WHEREAS, cavernous angiomasangioma appearshould tonot betake passedblood fromthinners oneor easpirin, abut nare brarely 24aware generationthat tothey have the next;disease;

and u [ WHEREAS, those with a cavernous angioma should not take .212044.1 blood thinners or aspirin, but are rarely aware that they have the disease;

and WHEREAS, a person with a cavernous angioma may go HJM 7 Page 1 undiagnosed until sudden death or stroke;

and BE IT FURTHER RESOLVED that the committee be requested to e e 17 devise educational campaigns that use the resources available e e n d 18 to government agencies and hospitals to inform New Mexico = = l ] 19 residents of the dangers and warning signs of cavernous a l r i 20 angioma;

and t e a t BE IT FURTHER RESOLVED that the committee discuss with New m m 21 e d r e 22 Mexico health care providers the most appropriate international c e r c 23 statistical classification of diseases codes to improve e a n b 24 tracking of the illness in New Mexico;

and u [ BE IT FURTHER RESOLVED that the committee request New .212044.1 - 2 - Mexico primary health care providers to report to the department of health the number of patients diagnosed with cerebral cavernous malformation in the provider's caseload by December 31, 2019;

and HJM 7 Page 2 BE IT FURTHER RESOLVED that the committee request that the medical assistance division of the human services department determine if reimbursement through medicaid is available for genetic testing of those Hispanic New Mexico residents at risk for the illness;

and e e 17 BE IT FURTHER RESOLVED that copies of this memorial be e e n d 18 transmitted to the secretary of health and the president of the = = l ] 19 board of regents of the university of New Mexico.

aHJM l7 rPage i 20 - 3 -25 t e a t m m 21 e d r e 22 c e r c 23 e a n b 24 u [ .212044.1