Illinois 96th Regular Session Status: Enacted 1 D cosponsors

SB 397 — STATE GOVERNMENT-TECH

Last action — Public Act . . . . . . . . . 96-0790

  1. ✓
    Introduced
  2. ✓
    In Committee
  3. ✓
    Passed Senate
  4. ✓
    Passed House
  5. ✓
    To Executive
  6. 6
    Enacted

This bill has been enacted into law. Introduced February 06, 2009. Enacted.

Prognosis

Likely to advance 72% · moderate confidence

Where this bill stands today.

Odds of enactment

High

How often bills like it became law.

  • Enacted

    Current position in the legislative process.

  • 1 sponsor

    0 primary, 1 co-sponsors signed on.

  • Single-party support

    Sponsorship is currently within one party (1 D).

  • Cleared a recorded vote

    Passed 3 recorded votes so far.

Prognosis reads this bill's own signals — stage, sponsorship breadth, committee status, recorded votes and cross-state momentum. Odds come from a model trained on which bills have become law.

Summary

Amends the Department of Human Services Act. Makes a technical change in a Section concerning the legislative purpose of the Act.

Bill Text

What changed in the latest version

99 added · 18 removed

Plain-language change summary

The bill SB 397 has been revised to establish the Hemophilia Advisory Review Board, which will provide recommendations on health policies and treatment standards for individuals with hemophilia and other bleeding disorders. This is significant because it aims to ensure that treatment options remain accessible and aligned with best practices as determined by recognized health organizations. Additionally, the previous section about data sharing agreements by the Department of Human Services has been removed, possibly highlighting a shift in focus toward patient care rather than data handling.

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SB0397 Engrossed LRB096 06428 RCE 16512 b AN ACT concerning State government.
SB0397 Enrolled LRB096 06428 RCE 16512 b AN ACT concerning State government.
The Department of Human Services Act is amended by adding Section 1-35 as follows:
The Hemophilia Care Act is amended by changing Section 2.5 as follows:
(20 ILCS 1305/1-35 new) Sec.
(410 ILCS 420/2.5) Sec.
1-35.
2.5.
Data sharing.
Hemophilia Advisory Review Board.
Notwithstanding any prohibition by any state or federal privacy law provisions, the Department of Human Services shall execute any data sharing intergovernmental agreements as requested by any state, municipal, or local government agency.
(a) The Director of Healthcare and Family Services Public Health in collaboration and in consultation with the Director of Insurance, shall establish an independent advisory board known as the Hemophilia Advisory Review Board.
Such requests shall be directed to the Secretary or his or her designee, and the agreement shall be executed expeditiously per an intergovernmental agreement.
The Board shall review, may comment upon, and make recommendations to the Directors with regard to, but not limited to the following:
The Department's databases that would be subject to such a database sharing agreement may include the DHS Client Database, the DHS Child Care Tracking System, the Cornerstone Database, and any other database commonly used by the Department.
(1) Proposed legislative or administrative changes to policies and programs that are integral to the health and wellness of individuals with hemophilia and other bleeding disorders.
Section 99.
(2) Standards of care and treatment for persons living with hemophilia and other bleeding disorders.
In examining standards of care, the Board shall protect open access to any and all treatments for hemophilia and other bleeding disorders, in accordance with federal guidelines and standards of care guidelines developed by the Medical and SB0397 Enrolled - 2 - LRB096 06428 RCE 16512 b Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF), an internationally recognized body whose guidelines set the standards of care for hemophilia and other bleeding disorders around the world.
(3) The development of community-based initiatives to increase awareness of care and treatment for persons living with hemophilia and other bleeding disorders.
The Department of Healthcare and Family Services Health may provide such services through cooperative agreements with Hemophilia Treatment Centers, medical facilities, schools, nonprofit organizations servicing the bleeding disorder community, or other appropriate means.
(4) Facilitating linkages for persons with hemophilia and other bleeding disorders.
(5) Protecting the rights of people living with hemophilia and other bleeding disorders to appropriate health insurance coverage be it under a private or State-sponsored health insurance provider.
(b) The Board shall consist of the Director of Healthcare and Family Services and the Director of Insurance or their designee, who shall serve as non-voting members, and 7 voting members appointed by the Governor in consultation and in collaboration with the Directors.
The voting members shall be selected from among the following member groups:
(1) one board-certified physician licensed, practicing and currently treating individuals with hemophilia or SB0397 Enrolled - 3 - LRB096 06428 RCE 16512 b other bleeding disorders;
(2) one nurse licensed, practicing and currently treating individuals with hemophilia or other bleeding disorders;
(3) one social worker licensed, practicing and currently treating individuals with hemophilia or other bleeding disorders;
(4) one representative of a federally funded Hemophilia Treatment Center;
(5) one representative of an organization established under the Illinois Insurance Code for the purpose of providing health insurance;
(6) one representative of a voluntary health organization that currently services the hemophilia and other bleeding disorders community;
and (7) one patient or caregiver of a patient with hemophilia or other bleeding disorder.
The Board may also have up to 5 additional nonvoting members as determined appropriate by the Directors.
Nonvoting members may be persons with or caregivers of a patient with hemophilia or a bleeding disorder other than hemophilia or persons experienced in the diagnosis, treatment, care, and support of individuals with hemophilia or other bleeding disorders.
No more than a majority of the voting members may be of the same political party.
Members of the Board shall elect one of its members to act as chair for a term of 3 years.
The chair SB0397 Enrolled - 4 - LRB096 06428 RCE 16512 b shall retain all voting rights.
If there is a vacancy on the Board, such position may be filled in the same manner as the original appointment.
Members of the Board shall receive no compensation, but may be reimbursed for actual expenses incurred in the carrying out of their duties.
The Board shall meet no less than 4 times per year and follow all policies and procedures of the State of Illinois Open Meetings Law.
(c) No later than 6 months after the date of enactment of this amendatory Act, the Board shall submit to the Governor and the General Assembly a report with recommendations for maintaining access to care and obtaining appropriate health insurance coverage for individuals with hemophilia and other bleeding disorders.
The report shall be subject to public review and comment prior to adoption.
No later than 6 months after adoption by the Governor and Legislature and annually thereafter, the Director of Healthcare and Family Services shall issue a report, which shall be made available to the public, on the status of implementing the recommendations as proposed by the Board and on any state and national activities with regard to hemophilia and other bleeding disorders.
(Source:
P.A.
95-12, eff.
7-2-07;
revised 10-23-08.) Section 99.
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Action History

  1. Public Act . . . . . . . . . 96-0790

  2. Effective Date September 25, 2009

  3. Governor Approved

  4. Sent to the Governor

  5. Passed Both Houses

  6. House Floor Amendment No. 1 Senate Concurs 057-000-000

  7. 3/5 Vote Required

  8. House Floor Amendment No. 1 Motion to Concur Be Approved for Consideration Assignments

  9. House Floor Amendment No. 1 Motion to Concur Referred to Assignments

  10. House Floor Amendment No. 1 Motion to Concur Filed with Secretary Sen. Mattie Hunter

  11. Placed on Calendar Order of Concurrence House Amendment(s) 1 - June 24, 2009

  12. Secretary's Desk - Concurrence House Amendment(s) 1

  13. Third Reading - Short Debate - Passed 118-000-000

  14. Placed on Calendar Order of 3rd Reading - Short Debate

  15. House Floor Amendment No. 1 Adopted by Voice Vote

  16. House Floor Amendment No. 1 Recommends Be Adopted Human Services Committee; 007-000-000

  17. Alternate Chief Sponsor Changed to Rep. Joseph M. Lyons

  18. House Floor Amendment No. 1 Rules Refers to Human Services Committee

  19. House Floor Amendment No. 1 Referred to Rules Committee

  20. House Floor Amendment No. 1 Filed with Clerk by Rep. Joseph M. Lyons

  21. Final Action Deadline Extended-9(b) May 31, 2009

  22. Final Action Deadline Extended-9(b) May 29, 2009

  23. Held on Calendar Order of Second Reading - Short Debate

  24. Second Reading - Short Debate

  25. Placed on Calendar 2nd Reading - Short Debate

  26. Do Pass / Short Debate State Government Administration Committee; 016-000-000

  27. Assigned to State Government Administration Committee

  28. Referred to Rules Committee

  29. First Reading

  30. Chief House Sponsor Rep. Julie Hamos

  31. Placed on Calendar Order of First Reading

  32. Arrived in House

  33. Third Reading - Passed; 055-000-000

  34. Placed on Calendar Order of 3rd Reading

  35. Senate Floor Amendment No. 1 Adopted; Hunter

  36. Recalled to Second Reading

  37. Senate Floor Amendment No. 1 Recommend Do Adopt Human Services; 009-000-000

  38. Senate Floor Amendment No. 1 Assignments Refers to Human Services

  39. Placed on Calendar Order of 3rd Reading March 31, 2009

  40. Second Reading

  41. Senate Floor Amendment No. 1 Referred to Assignments

  42. Senate Floor Amendment No. 1 Filed with Secretary by Sen. Mattie Hunter

  43. Chief Sponsor Changed to Sen. Mattie Hunter

  44. Placed on Calendar Order of 2nd Reading March 17, 2009

  45. Do Pass Executive; 012-000-000

  46. Assigned to Executive

  47. Referred to Assignments

  48. First Reading

  49. Filed with Secretary by Sen. John J. Cullerton

Sponsors

Sponsorship breakdown

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0 sponsors · 1 co-sponsors · 182 not signed on

Sponsors (0)

None.

Co-sponsors (1)

Not signed on (182)

182 members have not signed on to this bill.

Show all 182 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Votes

Concurrence, Amendment 1

Passed 57 Yea · 0 Nay · 2 Other
Party YeaNayPresentNot Voting
Democrat 9000
Unaffiliated 47002
Republican 1000
Total 57002
% of votes cast 97%0%0%3%
How each member voted (59)
Member Party Vote
Noland — Yea
Kotowski — Yea
Lauzen — Yea
McCarter — Yea
Meeks — Yea
Millner — Yea
Schoenberg — Yea
Silverstein — Yea
Steans — Yea
Trotter — Yea
Viverito — Yea
Demuzio — Yea
Jacobs — Yea
Munoz — Yea
Jones, J. — Yea
Brady — Yea
Sullivan — Yea
Clayborne — Yea
Duffy — Yea
Forby — Yea
Frerichs — Yea
Garrett — Yea
Haine — Yea
Hutchinson — Yea
Luechtefeld — Yea
Cullerton — Yea
Maloney — Yea
Wilhelmi — Yea
Cronin — Yea
Crotty — Yea
Dahl — Yea
DeLeo — Yea
Dillard — Not Voting
Hendon — Yea
Hultgren — Yea
Pankau — Yea
Radogno — Yea
Raoul — Yea
Righter — Yea
Risinger — Not Voting
Rutherford — Yea
Sandoval — Yea
Link — Yea
Althoff — Yea
Martinez — Yea
Bivins — Yea
Bomke — Yea
Bond — Yea
Burzynski — Yea
David Koehler Democrat Yea
Don Harmon Democrat Yea
Emil Jones, III Democrat Yea
Eva-Dina Delgado Democrat Yea
Kimberly A. Lightford Democrat Yea
Lakesia Collins Democrat Yea
Laura M. Murphy Democrat Yea
Linda Holmes Democrat Yea
Mattie Hunter Democrat Yea
Dave Syverson Republican Yea

Official roll call →

Third Reading

Passed 118 Yea · 0 Nay
Party YeaNayPresentNot Voting
Unaffiliated 103000
Democrat 11000
Republican 4000
Total 118000
% of votes cast 100%0%0%0%
How each member voted (118)
Member Party Vote
Hamos — Yea
Holbrook — Yea
Jakobsson — Yea
Nekritz — Yea
Lang — Yea
Leitch — Yea
Mathias — Yea
McAuliffe — Yea
McCarthy — Yea
Mell — Yea
Mendoza — Yea
Moffitt — Yea
Mulligan — Yea
Myers — Yea
Osterman — Yea
Ryg — Yea
Thapedi — Yea
Bradley — Yea
McGuire — Yea
Brady — Yea
Tryon — Yea
Turner — Yea
Verschoore — Yea
Wait — Yea
Sullivan — Yea
Burke — Yea
Mitchell, Bill — Yea
Washington — Yea
Mitchell, Jerry — Yea
Gordon, Careen — Yea
Gordon, Jehan — Yea
Hannig — Yea
Harris — Yea
Watson — Yea
Hernandez — Yea
Cavaletto — Yea
Coladipietro — Yea
Cole — Yea
Colvin — Yea
Connelly — Yea
Eddy — Yea
Farnham — Yea
Flider — Yea
Flowers — Yea
Fortner — Yea
Franks — Yea
Fritchey — Yea
Golar — Yea
Graham — Yea
Hatcher — Yea
Madigan — Yea
Howard — Yea
Winters — Yea
Yarbrough — Yea
Zalewski — Yea
Coulson — Yea
Cross — Yea
Cultra — Yea
Currie — Yea
D'Amico — Yea
Jackson — Yea
Davis, Monique — Yea
Reitz — Yea
Lyons — Yea
Dugan — Yea
Dunkin — Yea
Durkin — Yea
Jefferson — Yea
Kosel — Yea
Osmond — Yea
Phelps — Yea
Pihos — Yea
Poe — Yea
Pritchard — Yea
Ramey — Yea
Reboletti — Yea
Reis — Yea
Riley — Yea
Sacia — Yea
Saviano — Yea
Schmitz — Yea
Senger — Yea
Sommer — Yea
Soto — Yea
Acevedo — Yea
Arroyo — Yea
Bassi — Yea
Beaubien — Yea
Beiser — Yea
Bellock — Yea
Berrios — Yea
Biggins — Yea
Mautino — Yea
Black — Yea
Boland — Yea
May — Yea
Bost — Yea
Brauer — Yea
Brosnahan — Yea
Burns — Yea
McAsey — Yea
Froehlich — Yea
Chapa LaVia — Yea
Anthony DeLuca Democrat Yea
Fred Crespo Democrat Yea
Jay Hoffman Democrat Yea
La Shawn K. Ford Democrat Yea
Lakesia Collins Democrat Yea
Mark L. Walker Democrat Yea
Nicholas K. Smith Democrat Yea
Patrick J. Joyce Democrat Yea
Robert "Bob" Rita Democrat Yea
Sara Feigenholtz Democrat Yea
William "Will" Davis Democrat Yea
Brad Stephens Republican Yea
Chapin Rose Republican Yea
Chris Miller Republican Yea
Jil Tracy Republican Yea

Official roll call →

Third Reading

Passed 55 Yea · 0 Nay · 4 Other
Party YeaNayPresentNot Voting
Unaffiliated 45004
Democrat 9000
Republican 1000
Total 55004
% of votes cast 93%0%0%7%
How each member voted (59)
Member Party Vote
Hultgren — Yea
Hutchinson — Yea
McCarter — Yea
Meeks — Yea
Millner — Yea
Schoenberg — Yea
Silverstein — Yea
Demuzio — Yea
Jacobs — Yea
Dillard — Yea
Duffy — Yea
Munoz — Yea
Jones, J. — Yea
Kotowski — Yea
Brady — Yea
Sullivan — Yea
Lauzen — Yea
Link — Yea
Luechtefeld — Not Voting
Maloney — Yea
Noland — Yea
Cullerton — Yea
Radogno — Yea
Steans — Yea
Trotter — Yea
Viverito — Yea
Wilhelmi — Yea
Clayborne — Yea
Cronin — Yea
Crotty — Yea
Dahl — Yea
DeLeo — Yea
Garrett — Yea
Haine — Yea
Hendon — Yea
Pankau — Yea
Raoul — Yea
Righter — Not Voting
Risinger — Not Voting
Rutherford — Not Voting
Sandoval — Yea
Althoff — Yea
Martinez — Yea
Bivins — Yea
Bomke — Yea
Bond — Yea
Burzynski — Yea
Forby — Yea
Frerichs — Yea
David Koehler Democrat Yea
Don Harmon Democrat Yea
Emil Jones, III Democrat Yea
Eva-Dina Delgado Democrat Yea
Kimberly A. Lightford Democrat Yea
Lakesia Collins Democrat Yea
Laura M. Murphy Democrat Yea
Linda Holmes Democrat Yea
Mattie Hunter Democrat Yea
Dave Syverson Republican Yea

Official roll call →

Subjects

healthcare technology
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Frequently asked questions

What does SB 397 do?
Amends the Department of Human Services Act. Makes a technical change in a Section concerning the legislative purpose of the Act.
Who sponsors SB 397?
SB 397 is sponsored by Mattie Hunter (Democrat).
What is the current status of SB 397?
This bill has been enacted into law. Introduced February 06, 2009. Enacted.
Where can I track SB 397?
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