SB 269 — Establishing advisory council on rare diseases
Last action — Chapter 259, Acts, Regular Session, 2020
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✓Introduced
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✓In Committee
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✓Passed Senate
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✓Passed House of Delegates
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✓To Executive
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6Enacted
This bill has been enacted into law. Introduced January 10, 2020. Enacted.
Odds of enactment
High chanceBased on the sponsor, cosponsors, and committee posture, this bill has a high chance of becoming law.
Upgrade to see the exact probability and what's driving it.
A statistical estimate from our own model of past outcomes — an insight, not a guarantee. Policymaking is volatile.
Prognosis
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Enacted
Current position in the legislative process.
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5 sponsors
1 primary, 4 co-sponsors signed on.
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Single-party support
Sponsorship is currently within one party (1 R).
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Cleared a recorded vote
Passed 2 recorded votes so far.
Based on stage, sponsorship breadth, committee status, recorded votes, and cross-state momentum — a description of the observable signals, not a prediction.
Bill Text
What changed in the latest version
12 added · 10 removedPlain-language change summary
The amendment to SB 269 involves replacing the original title with a new one that focuses on creating an advisory council on rare diseases in West Virginia. This council will include defined members, have specific duties, and will also establish a special revenue account to support its work. This change is important because it aims to enhance the state's approach to addressing the challenges faced by those with rare diseases, ensuring that there is a dedicated group to advocate and guide health policies in this area.
SB269 HHFAT HHRHill AM2-27 #1 CR 3338 TheDelegate CommitteeHill on Health and Human Resources moved to amend the bill onby pagestriking 2,out line 16 after the word,title “years”and bysubstituting insertingtherefor a periodnew andtitle, strikingto theread remainderas offollows: the subsection.;
And,Eng. On page 2, line 24 by striking subsection (c) in its entirety and re-lettering the remaining subsections accordingly;
And,Senate OnBill pageNo. 4, section 3, line 27, after the period by inserting the following:
“The269 advisory-- council“A shallBill terminateto onamend Januarythe 1,Code 2023.”of West Virginia, Adopted1931, Rejectedas amended, by adding thereto a new article, designated §16-5AA-1, §16-5AA-2, §16-5AA-3, §16-5AA-4, §16-5AA-5, and §16-5AA-6, all relating to establishing an advisory council on rare diseases;
creating the advisory council;
providing for its composition;
setting terms of members;
defining terms;
defining duties, subject to the availability of resources;
defining powers of the advisory council;
setting out particular discretionary duties of the Secretary of the Department of Health and Human Resources;
terminating the council;
and establishing a special revenue account Adopted Rejected
View plain text versions (5)
- SB269 HFAT HILL 2-27 adopted.htm View text html
- SB269 H HHR AM _1 adopted.htm View text Current html
- Committee Substitute Enrolled Committee Substitute html
- Committee Substitute View text html
- Introduced Introduced Version html
Action History
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Chapter 259, Acts, Regular Session, 2020
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Approved by Governor 3/25/20
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To Governor 3/18/20
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Approved by Governor 3/25/20 - House Journal
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Approved by Governor 3/25/20 - Senate Journal
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To Governor 3/18/20 - House Journal
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To Governor 3/18/20 - Senate Journal
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Completed legislative action
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Communicated to House
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Senate concurred in House amendments and passed bill (Roll No. 583)
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House Message received
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Communicated to Senate
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Title amendment adopted (Voice vote)
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Passed House (Roll No. 560)
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Read 3rd time
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On 3rd reading, Special Calendar
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Committee amendment adopted (Voice vote)
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Read 2nd time
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On 2nd reading, Special Calendar
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Read 1st time
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On 1st reading, Special Calendar
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2nd reference dispensed
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With amendment, do pass
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To House Health and Human Resources
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To Health and Human Resources then Government Organization
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Introduced in House
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Ordered to House
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Passed Senate (Roll No. 295)
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Read 3rd time
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On 3rd reading
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Read 2nd time
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On 2nd reading
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Read 1st time
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On 1st reading
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Reported do pass
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To Government Organization
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Committee substitute reported, but first to Government Organization
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To Health and Human Resources
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Introduced in Senate
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To Health and Human Resources then Government Organization
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Filed for introduction
Sponsors
- Stollings · Primary
- Patricia Rucker · Cosponsor
- Roberts · Cosponsor
- Cline · Cosponsor
- Jeffries · Cosponsor
Sponsorship breakdown
Export CSV (upgrade) →1 sponsors · 4 co-sponsors · 147 not signed on
Sponsors (1)
- Stollings
Co-sponsors (4)
- Patricia Rucker Republican
- Roberts
- Cline
- Jeffries
Not signed on (147)
147 members have not signed on to this bill.
Show all 147 →"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.
Votes
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Republican | 25 | 0 | 0 | 0 |
| Unaffiliated | 67 | 0 | 0 | 3 |
| Democrat | 5 | 0 | 0 | 0 |
| Total | 97 | 0 | 0 | 3 |
| % of votes cast | 97% | 0% | 0% | 3% |
How each member voted (100)
| Member | Party | Vote |
|---|---|---|
| Kump | — | Yea |
| Rowe | — | Yea |
| Angelucci | — | Yea |
| Espinosa | — | Yea |
| Lavender-Bowe | — | Yea |
| Shott | — | Yea |
| Atkinson | — | Yea |
| Evans | — | Yea |
| Little | — | Yea |
| Skaff | — | Yea |
| Fast | — | Yea |
| Longstreth | — | Yea |
| Sponaugle | — | Yea |
| Barnhart | — | Yea |
| Fleischauer | — | Yea |
| Lovejoy | — | Yea |
| Staggers | — | Yea |
| Mandt | — | Yea |
| Steele | — | Yea |
| Foster | — | Yea |
| Storch | — | Yea |
| Bates | — | Yea |
| Graves | — | Yea |
| Summers | — | Yea |
| Bibby | — | Yea |
| Hamrick | — | Yea |
| Maynard | — | Yea |
| Swartzmiller | — | Yea |
| Boggs | — | Yea |
| Hanna | — | Yea |
| Sypolt | — | Yea |
| Brown, N. | — | Yea |
| Miley | — | Yea |
| Thompson, C. | — | Yea |
| Brown, S. | — | Yea |
| Hardy | — | Yea |
| Thompson, R. | — | Yea |
| Hartman | — | Yea |
| Nelson | — | Yea |
| Tomblin | — | Yea |
| Byrd | — | Yea |
| Hicks | — | Yea |
| Pack | — | Yea |
| Cadle | — | Yea |
| Higginbotham | — | Yea |
| Paynter | — | Yea |
| Walker | — | Yea |
| Pethtel | — | Yea |
| Waxman | — | Yea |
| Canestraro | — | Yea |
| Phillips | — | Yea |
| Westfall | — | Yea |
| Capito | — | Yea |
| Householder | — | Yea |
| Porterfield | — | Yea |
| Caputo | — | Yea |
| Wilson | — | Yea |
| Pyles | — | Yea |
| Cowles | — | Yea |
| Jeffries, J. | — | Yea |
| Zukoff | — | Yea |
| Robinson | — | Yea |
| Rodighiero | — | Yea |
| Diserio | — | Yea |
| Doyle | — | Yea |
| Kessinger | — | Yea |
| Rowan | — | Yea |
| Estep-Burton | — | Not Voting |
| Hill | — | Not Voting |
| Linville | — | Not Voting |
| Evan Hansen | Democrat | Yea |
| John Williams | Democrat | Yea |
| Mike Pushkin | Democrat | Yea |
| Sean Hornbuckle | Democrat | Yea |
| Shawn Fluharty | Democrat | Yea |
| Ben Queen | Republican | Yea |
| Betsy Kelly | Republican | Yea |
| Betsy Kelly | Republican | Yea |
| Carl Martin | Republican | Yea |
| Christopher W. Toney | Republican | Yea |
| D. Rolland Jennings | Republican | Yea |
| Dean Jeffries | Republican | Yea |
| Evan Worrell | Republican | Yea |
| Gary G. Howell | Republican | Yea |
| George Miller | Republican | Yea |
| Jason Barrett | Republican | Yea |
| Jeff Campbell | Republican | Yea |
| Jim Butler | Republican | Yea |
| Joe Ellington | Republican | Yea |
| John Paul Hott | Republican | Yea |
| Mark Dean | Republican | Yea |
| Matthew Rohrbach | Republican | Yea |
| Mike Azinger | Republican | Yea |
| Pat McGeehan | Republican | Yea |
| Patrick Martin | Republican | Yea |
| Roger Hanshaw | Republican | Yea |
| Roy Cooper | Republican | Yea |
| T. Kevan Bartlett | Republican | Yea |
| Vernon Criss | Republican | Yea |
| William Anderson | Republican | Yea |
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Republican | 2 | 0 | 0 | 0 |
| Unaffiliated | 32 | 0 | 0 | 0 |
| Total | 34 | 0 | 0 | 0 |
| % of votes cast | 100% | 0% | 0% | 0% |
How each member voted (34)
| Member | Party | Vote |
|---|---|---|
| LINDSAY | — | Yea |
| SMITH | — | Yea |
| BALDWIN | — | Yea |
| MANN | — | Yea |
| STOLLINGS | — | Yea |
| BEACH | — | Yea |
| MARONEY | — | Yea |
| SWOPE | — | Yea |
| BLAIR | — | Yea |
| MAYNARD | — | Yea |
| SYPOLT | — | Yea |
| BOLEY | — | Yea |
| PALUMBO | — | Yea |
| TAKUBO | — | Yea |
| PITSENBARGER | — | Yea |
| TARR | — | Yea |
| CLINE | — | Yea |
| PLYMALE | — | Yea |
| TRUMP | — | Yea |
| FACEMIRE | — | Yea |
| PREZIOSO | — | Yea |
| UNGER | — | Yea |
| HAMILTON | — | Yea |
| ROBERTS | — | Yea |
| WELD | — | Yea |
| HARDESTY | — | Yea |
| ROMANO | — | Yea |
| WOELFEL | — | Yea |
| IHLENFELD | — | Yea |
| RUCKER | — | Yea |
| MR PRESIDENT | — | Yea |
| JEFFRIES | — | Yea |
| Charles H. Clements | Republican | Yea |
| Mike Azinger | Republican | Yea |
Subjects
Frequently asked questions
- Who sponsors SB 269?
- SB 269 is sponsored by Stollings, Patricia Rucker (Republican), Roberts, Cline, and Jeffries.
- What is the current status of SB 269?
- This bill has been enacted into law. Introduced January 10, 2020. Enacted.
- Where can I track SB 269?
- Track SB 269 free on One Click Politics — get push/email alerts when it moves.
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