New York 2025 Session Status: Introduced

A1296 — Establishes the rare disease advisory council

Last action — Assembly Floor Calendar

  1. 1
    Introduced
  2. 2
    In Committee
  3. 3
    Passed Assembly
  4. 4
    Passed Senate
  5. 5
    To Executive
  6. 6
    Enacted

This bill has been introduced in the Assembly. Introduced January 09, 2025. It must pass committee before a floor vote.

Next likely step: a committee referral and hearing.

Prognosis

Not enough signal yet

Where this bill stands today.

Odds of enactment

Low

How often bills like it became law.

Not enough signal yet to read this bill's trajectory — we surface a likelihood only once there's real movement (stage, sponsorship, committee, or votes) to point to.

Prognosis reads this bill's own signals — stage, sponsorship breadth, committee status, recorded votes and cross-state momentum. Odds come from a model trained on which bills have become law.

Summary

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Bill Text

Action History

  1. SUBSTITUTED BY S1287B

  2. AMENDED ON THIRD READING 1296B

  3. ORDERED TO THIRD READING CAL.47

  4. SUBSTITUTED BY S1287A

  5. ORDERED TO THIRD READING RULES CAL.291

  6. RULES REPORT CAL.291

  7. REPORTED

  8. REPORTED REFERRED TO RULES

  9. REPORTED REFERRED TO WAYS AND MEANS

  10. PRINT NUMBER 1296A

  11. AMEND AND RECOMMIT TO HEALTH

  12. REFERRED TO HEALTH

Sponsors

Sponsorship breakdown

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1 sponsors · 0 co-sponsors · 218 not signed on

Sponsors (1)

Co-sponsors (0)

None.

Not signed on (218)

218 members have not signed on to this bill.

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"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Subjects

healthcare health-insurance
Cross-referencing the record. Reading this bill against every other bill in the corpus by meaning, not keywords. Only the first open is slow. It’s instant for you after this. Matching · Ranking · Engrossing

Frequently asked questions

What does A1296 do?
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Who sponsors A1296?
A1296 is sponsored by Amy Paulin.
What is the current status of A1296?
This bill has been introduced in the Assembly. Introduced January 09, 2025. It must pass committee before a floor vote.
Where can I track A1296?
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Last checked for changes 3 months ago · updated continuously

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