S1287 — Establishes the rare disease advisory council
Last action — Passed Assembly
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✓Introduced
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✓In Committee
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3Passed Senate
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4Passed Assembly
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5To Executive
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6Enacted
This bill has passed the Senate. Introduced January 09, 2025. It now moves to the second chamber.
Next likely step: consideration and a floor vote in the Assembly.
Odds of enactment
High chanceBased on the sponsor, cosponsors, and committee posture, this bill has a high chance of becoming law.
Upgrade to see the exact probability and what's driving it.
A statistical estimate from our own model of past outcomes — an insight, not a guarantee. Policymaking is volatile.
Prognosis
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Passed Senate
Current position in the legislative process.
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1 sponsor
1 primary, 0 co-sponsors signed on.
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Cleared a recorded vote
Passed 4 recorded votes so far.
Based on stage, sponsorship breadth, committee status, recorded votes, and cross-state momentum — a description of the observable signals, not a prediction.
Summary
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Bill Text
- Full text View text Current
Action History
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RETURNED TO SENATE
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PASSED ASSEMBLY
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ORDERED TO THIRD READING CAL.47
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SUBSTITUTED FOR A1296B
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REFERRED TO WAYS AND MEANS
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DELIVERED TO ASSEMBLY
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PASSED SENATE
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ADVANCED TO THIRD READING
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2ND REPORT CAL.
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1ST REPORT CAL.283
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PRINT NUMBER 1287B
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AMEND AND RECOMMIT TO HEALTH
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REFERRED TO HEALTH
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RETURNED TO SENATE
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DIED IN ASSEMBLY
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ORDERED TO THIRD READING RULES CAL.291
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SUBSTITUTED FOR A1296A
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REFERRED TO WAYS AND MEANS
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DELIVERED TO ASSEMBLY
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PASSED SENATE
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ADVANCED TO THIRD READING
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2ND REPORT CAL.
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1ST REPORT CAL.487
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PRINT NUMBER 1287A
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AMEND AND RECOMMIT TO HEALTH
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REFERRED TO HEALTH
Sponsors
- Roxanne J. Persaud · Primary
Sponsorship breakdown
Export CSV (upgrade) →1 sponsors · 0 co-sponsors · 218 not signed on
Sponsors (1)
Co-sponsors (0)
None.
Not signed on (218)
218 members have not signed on to this bill.
Show all 218 →"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.
Votes
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 62 | 0 | 0 | 1 |
| Total | 62 | 0 | 0 | 1 |
| % of votes cast | 98% | 0% | 0% | 2% |
How each member voted (63)
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 14 | 0 | 0 | 1 |
| Total | 14 | 0 | 0 | 1 |
| % of votes cast | 93% | 0% | 0% | 7% |
How each member voted (15)
| Member | Party | Vote |
|---|---|---|
| Christopher Ryan | — | Yea |
| Dan Stec | — | Yea |
| Gustavo Rivera | — | Yea |
| Jack M. Martins | — | Yea |
| Jake Ashby | — | Yea |
| Kevin S. Parker | — | Yea |
| Kristen Gonzalez | — | Yea |
| Lea Webb | — | Yea |
| Patrick M. Gallivan | — | Yea |
| Rachel May | — | Yea |
| Robert Jackson | — | Yea |
| Sam Sutton | — | Yea |
| Samra Brouk | — | Not Voting |
| Steve Rhoads | — | Yea |
| Zellnor Myrie | — | Yea |
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 60 | 0 | 0 | 3 |
| Total | 60 | 0 | 0 | 3 |
| % of votes cast | 95% | 0% | 0% | 5% |
How each member voted (63)
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 15 | 0 | 0 | 0 |
| Total | 15 | 0 | 0 | 0 |
| % of votes cast | 100% | 0% | 0% | 0% |
How each member voted (15)
| Member | Party | Vote |
|---|---|---|
| Brad Hoylman-Sigal | — | Yea |
| Christopher Ryan | — | Yea |
| Dan Stec | — | Yea |
| Gustavo Rivera | — | Yea |
| Jack M. Martins | — | Yea |
| Jake Ashby | — | Yea |
| Kevin S. Parker | — | Yea |
| Kristen Gonzalez | — | Yea |
| Lea Webb | — | Yea |
| Patrick M. Gallivan | — | Yea |
| Robert Jackson | — | Yea |
| Samra Brouk | — | Yea |
| Simcha Felder | — | Yea |
| Steve Rhoads | — | Yea |
| Zellnor Myrie | — | Yea |
Subjects
Frequently asked questions
- What does S1287 do?
- Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
- Who sponsors S1287?
- S1287 is sponsored by Roxanne J. Persaud.
- What is the current status of S1287?
- This bill has passed the Senate. Introduced January 09, 2025. It now moves to the second chamber.
- Where can I track S1287?
- Track S1287 free on One Click Politics — get push/email alerts when it moves.
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Last checked for changes 3 months ago · updated continuously
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