Illinois 104th General Assembly Status: Introduced 36 D cosponsors

HB3494      — HEALTH DATA PRIVACY ACT

Last action — Added Co-Sponsor Rep. Daniel Didech

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  1. 1
    Introduced
  2. 2
    In Committee
  3. 3
    Passed House
  4. 4
    Passed Senate
  5. 5
    To Executive
  6. 6
    Enacted

This bill has been introduced in the House. Introduced February 07, 2025. It must pass committee before a floor vote.

Next likely step: a committee referral and hearing.

Prognosis

Advancing 38% · moderate confidence

Where this bill stands today.

Odds of enactment

Low

How often bills like it became law.

  • Introduced

    Current position in the legislative process.

  • 36 sponsors

    1 primary, 35 co-sponsors signed on.

  • Single-party support

    Sponsorship is currently within one party (36 D).

  • Cleared a recorded vote

    Passed 1 recorded vote so far.

Prognosis reads this bill's own signals — stage, sponsorship breadth, committee status, recorded votes and cross-state momentum. Odds come from a model trained on which bills have become law.

In plain language

The bill regulates how health data can be collected, shared, and sold, ensuring privacy rights for individuals.

The Protect Health Data Privacy Act mandates that entities disclose their health data privacy policies and prohibits selling health data without individual consent. It also provides individuals rights regarding their health data, including access and deletion.

What this means for you
  • Workers: Workers in health-related fields will need to ensure compliance with new health data privacy requirements.
  • Families: Families will benefit from enhanced privacy protections for their members' health data.
  • Consumers: Consumers will have more control over their personal health data and the ability to prevent unauthorized sales of that information.

Summary

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.

Bill Text

We don't have the full text on file for this bill yet.

Read HB3494 on the official Illinois source →

Action History

  1. Added Co-Sponsor Rep. Daniel Didech

  2. Added Co-Sponsor Rep. Nicolle Grasse

  3. Added Co-Sponsor Rep. Stephanie A. Kifowit

  4. Added Co-Sponsor Rep. Elizabeth "Lisa" Hernandez

  5. Added Co-Sponsor Rep. Jay Hoffman

  6. Added Co-Sponsor Rep. Norma Hernandez

  7. Added Co-Sponsor Rep. Justin Slaughter

  8. Added Co-Sponsor Rep. Justin Cochran

  9. Added Co-Sponsor Rep. Michael Crawford

  10. Added Co-Sponsor Rep. Lisa Davis

  11. Rule 19(a) / Re-referred to Rules Committee

  12. Added Co-Sponsor Rep. Aarón M. Ortíz

  13. Added Co-Sponsor Rep. Robyn Gabel

  14. Added Co-Sponsor Rep. Jennifer Gong-Gershowitz

  15. Added Co-Sponsor Rep. Diane Blair-Sherlock

  16. Added Co-Sponsor Rep. Rita Mayfield

  17. Added Co-Sponsor Rep. Marcus C. Evans, Jr.

  18. Added Co-Sponsor Rep. Katie Stuart

  19. Added Co-Sponsor Rep. Laura Faver Dias

  20. Added Co-Sponsor Rep. Anna Moeller

  21. Added Co-Sponsor Rep. Kevin John Olickal

  22. Added Co-Sponsor Rep. Dagmara Avelar

  23. Added Co-Sponsor Rep. Lilian Jiménez

  24. Added Co-Sponsor Rep. Nabeela Syed

  25. Remove Chief Co-Sponsor Rep. Maurice A. West, II

  26. Added Chief Co-Sponsor Rep. Ann M. Williams

  27. Remove Chief Co-Sponsor Rep. Ann M. Williams

  28. Added Chief Co-Sponsor Rep. Ann M. Williams

  29. Added Chief Co-Sponsor Rep. Maurice A. West, II

  30. Added Co-Sponsor Rep. Margaret Croke

  31. Added Co-Sponsor Rep. Janet Yang Rohr

  32. Added Co-Sponsor Rep. Theresa Mah

  33. Added Co-Sponsor Rep. Will Guzzardi

  34. Added Co-Sponsor Rep. Maura Hirschauer

  35. Added Co-Sponsor Rep. Tracy Katz Muhl

  36. Added Co-Sponsor Rep. Kam Buckner

  37. Placed on Calendar 2nd Reading - Short Debate

  38. Approved for Consideration Rules Committee; 003-002-000

  39. Chief Sponsor Changed to Rep. Mary Beth Canty

  40. Rule 19(a) / Re-referred to Rules Committee

  41. Added Co-Sponsor Rep. Camille Y. Lilly

  42. Added Co-Sponsor Rep. Barbara Hernandez

  43. Held on Calendar Order of Second Reading - Short Debate

  44. Second Reading - Short Debate

  45. Added Co-Sponsor Rep. Kelly M. Cassidy

  46. Added Co-Sponsor Rep. Anne Stava

  47. Placed on Calendar 2nd Reading - Short Debate

  48. Do Pass / Short Debate Judiciary - Civil Committee; 013-007-000

  49. Assigned to Judiciary - Civil Committee

  50. Referred to Rules Committee

  51. First Reading

  52. Filed with the Clerk by Rep. Ann M. Williams

Sponsors

Sponsorship breakdown

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1 sponsors · 35 co-sponsors · 147 not signed on · 7 voted No

Sponsors (1)

Co-sponsors (35)

Not signed on (147)

147 members have not signed on to this bill.

Show all 147 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Votes

Judiciary

Passed 13 Yea · 7 Nay
Party YeaNayPresentNot Voting
Democrat 13000
Republican 0700
Total 13700
% of votes cast 65%35%0%0%
How each member voted (20)
Member Party Vote
Ann M. Williams Democrat Yea
Curtis J. Tarver, II Democrat Yea
Daniel Didech Democrat Yea
Dave Vella Democrat Yea
Eva-Dina Delgado Democrat Yea
Jay Hoffman Democrat Yea
Jennifer Gong-Gershowitz Democrat Yea
Kam Buckner Democrat Yea
Kevin John Olickal Democrat Yea
Lilian Jiménez Democrat Yea
Margaret Croke Democrat Yea
Mary Beth Canty Democrat Yea
Tracy Katz Muhl Democrat Yea
Bradley Fritts Republican Nay
Daniel J. Ugaste Republican Nay
David Friess Republican Nay
Jed Davis Republican Nay
Martin McLaughlin Republican Nay
Steven Reick Republican Nay
Tom Weber Republican Nay

Official roll call →

Subjects

civil-rights healthcare technology
Cross-referencing the record. Reading this bill against every other bill in the corpus by meaning, not keywords. Only the first open is slow. It’s instant for you after this. Matching · Ranking · Engrossing

Frequently asked questions

What does HB3494      do?
Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.
Who sponsors HB3494     ?
HB3494      is sponsored by Mary Beth Canty (Democrat), Ann M. Williams (Democrat), Anne Stava (Democrat), Kelly M. Cassidy (Democrat), Barbara Hernandez (Democrat), Camille Y. Lilly (Democrat), Kam Buckner (Democrat), Tracy Katz Muhl (Democrat), Maura Hirschauer (Democrat), Will Guzzardi (Democrat), Theresa Mah (Democrat), Janet Yang Rohr (Democrat), Margaret Croke (Democrat), Nabeela Syed (Democrat), Lilian Jiménez (Democrat), Dagmara Avelar (Democrat), Kevin John Olickal (Democrat), Anna Moeller (Democrat), Laura Faver Dias (Democrat), Katie Stuart (Democrat), Marcus C. Evans, Jr. (Democrat), Rita Mayfield (Democrat), Diane Blair-Sherlock (Democrat), Jennifer Gong-Gershowitz (Democrat), Robyn Gabel (Democrat), Aarón M. Ortíz (Democrat), Lisa Davis (Democrat), Michael Crawford (Democrat), Justin Cochran (Democrat), Justin Slaughter (Democrat), Norma Hernandez (Democrat), Jay Hoffman (Democrat), Elizabeth "Lisa" Hernandez (Democrat), Stephanie A. Kifowit (Democrat), Nicolle Grasse (Democrat), and Daniel Didech (Democrat).
What is the current status of HB3494     ?
This bill has been introduced in the House. Introduced February 07, 2025. It must pass committee before a floor vote.
Where can I track HB3494     ?
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