North Carolina 2025 Session Status: In Committee Bipartisan · 21 D · 2 R cosponsors

HB 1078 — Omnibus Life Sciences Appropriations.

Last action — Passed 1st Reading

  1. ✓
    Introduced
  2. 2
    In Committee
  3. 3
    Passed House
  4. 4
    Passed Senate
  5. 5
    To Executive
  6. 6
    Enacted

This bill is in committee in the House. Introduced April 28, 2026. It must pass committee before a floor vote.

Next likely step: a committee vote, then a floor vote in the House.

Prognosis

Advancing 42% · moderate confidence

Where this bill stands today.

Odds of enactment

Low

How often bills like it became law.

  • In Committee

    Current position in the legislative process.

  • 23 sponsors

    1 primary, 22 co-sponsors signed on.

  • Bipartisan support

    Sponsored across 2 parties (21 D · 2 R) — cross-party backing.

Prognosis reads this bill's own signals — stage, sponsorship breadth, committee status, recorded votes and cross-state momentum. Odds come from a model trained on which bills have become law.

Bill Text

What changed in the latest version

219 added · 218 removed

Plain-language change summary

The recent amendment to HB 1078 adds specific requirements for the composition of the Advisory Council on Rare Diseases. Instead of one representative researcher, the council will now include two physicians, and there will only be one registered nurse instead of two. These changes ensure that a broader range of expertise is present on the council, which can lead to better-informed decisions regarding rare disease research, treatment, and education in North Carolina. This adjustment acknowledges the increasing complexity of rare diseases and the need for diverse input in addressing them.

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GENERAL ASSEMBLY OF NORTH CAROLINA H.B.
GENERAL ASSEMBLY OF NORTH CAROLINA SESSION 2025 H 1 HOUSE BILL 1078 Short Title:
1078 Apr 28, 2026 SESSION 2025 HOUSE PRINCIPAL CLERK H D HOUSE BILL DRH10592-NIa-190C Short Title:
Representative White.
Representatives White and Reives (Primary Sponsors).
For a complete list of sponsors, refer to the North Carolina General Assembly web site.
A BILL TO BE ENTITLED AN ACT APPROPRIATING FUNDS TO THE DEPARTMENT OF COMMERCE FOR VARIOUS PURPOSES;
Appropriations, if favorable, Rules, Calendar, and Operations of the House April 29, 2026 A BILL TO BE ENTITLED AN ACT APPROPRIATING FUNDS TO THE DEPARTMENT OF COMMERCE FOR VARIOUS PURPOSES;
– There is established the Advisory Council on Rare Diseases within the School of Medicine of the University of North Carolina at Chapel Hill DepartmentofHealthandHumanServicestoadvisetheGovernor,theSecretary,andtheGeneral Assembly on research, diagnosis, treatment, and education relating to rare diseases.
– There is established the Advisory Council on Rare Diseases within the School of Medicine of the University of North Carolina at Chapel Hill DepartmentofHealthandHumanServicestoadvisetheGovernor,theSecretary,andtheGeneral *H1078-v-1* General Assembly Of North Carolina Session 2025 Assembly on research, diagnosis, treatment, and education relating to rare diseases.
This Part *DRH10592-NIa-190C* General Assembly Of North Carolina Session 2025 shall be known as Taylor's Law Establishing the Advisory Council on Rare Diseases.
This Part shall be known as Taylor's Law Establishing the Advisory Council on Rare Diseases.
One representative researcher from each an academic research institutionin this Statethatreceives anygrant funding forrarediseases research.
One representative researcher from each an academic research institutionin this Statethatreceives anygrant fundingforrarediseases research.
(2) ThechairsoftheJointLegislativeOversightCommitteeonHealthandHuman Services, or the chairs' designees, shall serve on the advisory council.
(2) ThechairsoftheJoint LegislativeOversightCommitteeonHealthandHuman Services, or the chairs' designees, shall serve on the advisory council.
(3) The Secretary, or the Secretary's designee, shall serve as an ex officio, nonvoting member of the advisory council.
Page 2 House Bill 1078-First Edition General Assembly Of North Carolina Session 2025 (3) The Secretary, or the Secretary's designee, shall serve as an ex officio, nonvoting member of the advisory council.
Page 2 DRH10592-NIa-190C General Assembly Of North Carolina Session 2025 (c) Members Length of Terms.
(c) Members Length of Terms.
–Anyappointmentto fill avacancy on the advisory council created by the resignation, dismissal, death, or disability of a member shall be filled by the appointing authority for the balance of the unexpired term.
–Anyappointmentto fill avacancyon the advisorycouncil created by the resignation, dismissal, death, or disability of a member shall be filled by the appointing authority for the balance of the unexpired term.
(g) The chair shall convene the first meeting of the advisory council no later than October 1, 2015.
(g) The chair shall convene the first meetingof the advisorycouncil no later than October 1, 2015.
(2) Report to the Secretary, the Governor, and the Joint Legislative Oversight Committee on Health and Human Services Services, and the Fiscal Research Division on behalf of the General Assembly not later than January 1, 2016, and annually thereafter, on the activities of the advisory council and its findings and recommendations regarding rare disease research and care in North Carolina, including any recommendations for statutory changes and DRH10592-NIa-190C Page 3 General Assembly Of North Carolina Session 2025 amendments to the structure, organization, and powers or duties of the advisory council.
(2) Report to the Secretary, the Governor, and the Joint Legislative Oversight Committee on Health and Human Services Services, and the Fiscal Research Division on behalf of the General Assembly not later than January 1, 2016, and annually thereafter, on the activities of the advisory council and its House Bill 1078-First Edition Page 3 General Assembly Of North Carolina Session 2025 findings and recommendations regarding rare disease research and care in North Carolina, including any recommendations for statutory changes and amendments to the structure, organization, and powers or duties of the advisory council.
There is appropriated from the General Fund to the Department of Health and Human Services the sum of two hundred fifty thousand dollars ($250,000) in recurring funds beginning in the 2026-2027 fiscal year to be allocated to cover the operating expenses of the Advisory Council on Rare Diseases authorized by G.S.
There is appropriated from the General Fund to the Department of Health and Human Services the sum of two hundred fifty thousand dollars ($250,000) in recurring funds beginning in the 2026-2027 fiscal year to be allocated to cover the operating expenses of the Advisory Council on Rare Diseases authorized byG.S.
(4) Ensure that the eligible project will supply at least sixty percent (60%) of the total aggregatewater and wastewaterneeds requiredby themanufacturing site as developed or expanded by the investment made under subdivision (1) of this subsection.
(4) Ensure that the eligible project will supply at least sixty percent (60%) of the total aggregatewater and wastewaterneeds requiredbythemanufacturingsite Page 4 House Bill 1078-First Edition General Assembly Of North Carolina Session 2025 as developed or expanded by the investment made under subdivision (1) of this subsection.
Page 4 DRH10592-NIa-190C General Assembly Of North Carolina Session 2025 (5) Not seek or accept any other grant from the State, including a grant pursuant to Part 2G of Article 10 of Chapter 143B of the General Statutes, for any jobs created as part of the company performance agreement.
(5) Not seek or accept any other grant from the State, including a grant pursuant to Part 2G of Article 10 of Chapter 143B of the General Statutes, for any jobs created as part of the company performance agreement.
PART VI.
House Bill 1078-First Edition Page 5 General Assembly Of North Carolina Session 2025 PART VI.
EFFECTIVE DATE DRH10592-NIa-190C Page 5 General Assembly Of North Carolina Session 2025 SECTION 6.
EFFECTIVE DATE SECTION 6.
Page 6 DRH10592-NIa-190C
Page 6 House Bill 1078-First Edition
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Action History

  1. Passed 1st Reading

  2. Ref to the Com on Appropriations, if favorable, Rules, Calendar, and Operations of the House

  3. Filed

Sponsors

Sponsorship breakdown

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1 sponsors · 22 co-sponsors · 156 not signed on

Sponsors (1)

Co-sponsors (22)

Not signed on (156)

156 members have not signed on to this bill.

Show all 156 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Subjects

healthcare technology
Cross-referencing the record. Reading this bill against every other bill in the corpus by meaning, not keywords. Only the first open is slow. It’s instant for you after this. Matching · Ranking · Engrossing

Frequently asked questions

Who sponsors HB 1078?
HB 1078 is sponsored by Phil Rubin (Democratic), James Roberson (Democratic), Amos L. Quick, III (Democratic), Larry W. Potts (Republican), Dante Pittman (Democratic), Garland E. Pierce (Democratic), Carolyn G. Logan (Democratic), Monika Johnson-Hostler (Democratic), B. Ray Jeffers (Democratic), Julia Greenfield (Democratic), Sarah Crawford (Democratic), Amanda P. Cook (Democratic), Mike Colvin (Democratic), Bryan Cohn (Democratic), Tracy Clark (Democratic), Maria Cervania (Democratic), Kanika Brown (Democratic), Gloristine Brown (Democratic), Mary Belk (Democratic), Cynthia Ball (Democratic), Eric Ager (Democratic), Robert T. Reives, II (Democratic), and Donna McDowell White (Republican).
What is the current status of HB 1078?
This bill is in committee in the House. Introduced April 28, 2026. It must pass committee before a floor vote.
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