North Carolina 2025 Session Status: In Committee Bipartisan · 15 D · 2 R · 2 I cosponsors

HB 525 — Reorganize and Fund Rare Disease Advisory Council.

Last action — Passed 1st Reading

  1. ✓
    Introduced
  2. 2
    In Committee
  3. 3
    Passed House
  4. 4
    Passed Senate
  5. 5
    To Executive
  6. 6
    Enacted

This bill is in committee in the House. Introduced March 26, 2025. It must pass committee before a floor vote.

Next likely step: a committee vote, then a floor vote in the House.

Odds of enactment

Low chance

Based on the sponsor, cosponsors, and committee posture, this bill has a low chance of becoming law.

Upgrade to see the exact probability and what's driving it.

A statistical estimate from our own model of past outcomes — an insight, not a guarantee. Policymaking is volatile.

Prognosis

Advancing 42% · moderate confidence

  • In Committee

    Current position in the legislative process.

  • 19 sponsors

    3 primary, 16 co-sponsors signed on.

  • Bipartisan support

    Sponsored across 3 parties (15 D · 2 R · 2 I) — cross-party backing.

Based on stage, sponsorship breadth, committee status, recorded votes, and cross-state momentum — a description of the observable signals, not a prediction.

Bill Text

What changed in the latest version

120 added · 119 removed

Plain-language change summary

The changes to Bill HB 525 primarily involved updating the language and clarifying the representation on a committee related to rare diseases. Specifically, the wording was modified to ensure it includes diverse voices, such as a representative researcher from academic institutions, parents of childhood rare disease survivors, caregivers, and professionals from relevant organizations. This matters because having a well-rounded committee can lead to better decision-making and support for those affected by rare diseases in North Carolina.

→
Previous
Latest
GENERAL ASSEMBLY OF NORTH CAROLINA H.B.
GENERAL ASSEMBLY OF NORTH CAROLINA SESSION 2025 H 1 HOUSE BILL 525 Short Title:
525 Mar 26, 2025 SESSION 2025 HOUSE PRINCIPAL CLERK H D HOUSE BILL DRH10161-MGa-124 Short Title:
Representative Carney.
Representatives Carney, Lambeth, Belk, and Cunningham (Primary Sponsors).
For a complete list of sponsors, refer to the North Carolina General Assembly web site.
A BILL TO BE ENTITLED AN ACT REVISING THE COMPOSITION AND DUTIES OF THE ADVISORY COUNCIL ON RARE DISEASES;
Appropriations, if favorable, Rules, Calendar, and Operations of the House March 27, 2025 A BILL TO BE ENTITLED AN ACT REVISING THE COMPOSITION AND DUTIES OF THE ADVISORY COUNCIL ON RARE DISEASES;
f.
*H525-v-1* General Assembly Of North Carolina Session 2025 f.
One representative researcher from each an academic research institutionin this Statethatreceives anygrant funding forrarediseases research.
One representative researcher from each an academic research institutionin this Statethatreceives anygrant fundingforrarediseases research.
*DRH10161-MGa-124* General Assembly Of North Carolina Session 2025 g.
g.
(2) ThechairsoftheJointLegislativeOversightCommitteeonHealthandHuman Services, or the chairs' designees, shall serve on the advisory council.
(2) ThechairsoftheJoint LegislativeOversightCommitteeonHealthandHuman Services, or the chairs' designees, shall serve on the advisory council.
–Anyappointmentto fill avacancy on the advisory council created by the resignation, dismissal, death, or disability of a member shall be filled by the appointing authority for the balance of the unexpired term.
–Anyappointmentto fill avacancyon the advisorycouncil created by the resignation, dismissal, death, or disability of a member shall be filled by the appointing authority for the balance of the unexpired term.
(d) Per Diem and Expenses.
Page 2 House Bill 525-First Edition General Assembly Of North Carolina Session 2025 (d) Per Diem and Expenses.
Page 2 DRH10161-MGa-124 General Assembly Of North Carolina Session 2025 (e) Administrative Support.
(e) Administrative Support.
(g) The chair shall convene the first meeting of the advisory council no later than October 1, 2015.
(g) The chair shall convene the first meetingof the advisorycouncil no later than October 1, 2015.
(5) Identify additional relevant areas for the advisory council to study and evaluate." SECTION 2.
(5) Identify additional relevant areas for the advisory council to study and evaluate." House Bill 525-First Edition Page 3 General Assembly Of North Carolina Session 2025 SECTION 2.
Effective July 1, 2025, there is appropriated from the General Fund to the Department of Health and Human Services the sum of two hundred fifty thousand dollars ($250,000) in recurring funds for the 2025-2026 fiscal year and the sum of two hundred fifty thousand dollars ($250,000) in recurring funds for the 2026-2027 fiscal year to be allocated to DRH10161-MGa-124 Page 3 General Assembly Of North Carolina Session 2025 cover the operating expenses of the Advisory Council on Rare Diseases authorized by Section 1 of this act.
Effective July 1, 2025, there is appropriated from the General Fund to the Department of Health and Human Services the sum of two hundred fifty thousand dollars ($250,000) in recurring funds for the 2025-2026 fiscal year and the sum of two hundred fifty thousand dollars ($250,000) in recurring funds for the 2026-2027 fiscal year to be allocated to cover the operating expenses of the Advisory Council on Rare Diseases authorized by Section 1 of this act.
Page 4 DRH10161-MGa-124
Page 4 House Bill 525-First Edition
⬇ Download PDF
View plain text versions (2)

Action History

  1. Passed 1st Reading

  2. Ref to the Com on Appropriations, if favorable, Rules, Calendar, and Operations of the House

  3. Filed

Sponsors

Sponsorship breakdown

Export CSV (upgrade) →

3 sponsors · 16 co-sponsors · 160 not signed on

Sponsors (3)

Co-sponsors (16)

Not signed on (160)

160 members have not signed on to this bill.

Show all 160 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Subjects

healthcare health-insurance
Cross-referencing the record. Reading this bill against every other bill in the corpus by meaning, not keywords. Only the first open is slow. It’s instant for you after this. Matching · Ranking · Engrossing

Frequently asked questions

Who sponsors HB 525?
HB 525 is sponsored by Shelly Willingham (Democratic), Renée A. Price (Democratic), Larry W. Potts (Republican), Marcia Morey (Democratic), Nasif Majeed (U), Carolyn G. Logan (Democratic), B. Ray Jeffers (Democratic), Zack Hawkins (Democratic), Pricey Harrison (Democratic), Aisha O. Dew (Democratic), Mike Colvin (Democratic), Maria Cervania (Democratic), Terry M. Brown Jr. (Democratic), Kanika Brown (Democratic), Gloristine Brown (Democratic), Carla D. Cunningham (U), Mary Belk (Democratic), Donny Lambeth (Republican), and Becky Carney (Democratic).
What is the current status of HB 525?
This bill is in committee in the House. Introduced March 26, 2025. It must pass committee before a floor vote.
Where can I track HB 525?
Track HB 525 free on One Click Politics — get push/email alerts when it moves.

Make your voice heard on HB 525

Find the representatives who decide this bill and tell them where you stand — for yourself, or mobilize your whole list in one click with One Click Politics advocacy software.

Find my representatives → Run a campaign

Stay ahead of HB 525

Last checked for changes 3 months ago · updated continuously

One Click Politics tracks every bill in Congress and all 50 states.

Track this bill →