Florida 2021 Regular Session Status: Enacted

SB 272 — Rare Disease Advisory Council

Last action — Chapter No. 2021-122

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  1. ✓
    Introduced
  2. ✓
    In Committee
  3. ✓
    Passed Senate
  4. ✓
    Passed House
  5. ✓
    To Executive
  6. 6
    Enacted

This bill has been enacted into law. Introduced December 15, 2020. Enacted.

Prognosis

Likely to advance 70% · moderate confidence

Where this bill stands today.

Odds of enactment

High

How often bills like it became law.

  • Enacted

    Current position in the legislative process.

  • 1 sponsor

    1 primary, 0 co-sponsors signed on.

  • Cleared a recorded vote

    Passed 5 recorded votes so far.

Prognosis reads this bill's own signals — stage, sponsorship breadth, committee status, recorded votes and cross-state momentum. Odds come from a model trained on which bills have become law.

Summary

Rare Disease Advisory Council; Creating the advisory council adjunct to the Department of Health; specifying the purpose of the advisory council; defining the term “rare disease”; prescribing duties and responsibilities of the advisory council, etc.

Bill Text

What changed in the latest version

73 added · 90 removed

73 line(s) added, 90 removed.

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Florida Senate - 2021 CS for CS for SB 272 By the Committees on Appropriations;
Florida Senate - 2021 CS for SB 272 By the Committee on Health Policy;
and Health Policy;
and Senator Baxley 588-01988-21 2021272c1 A bill to be entitled An act relating to the Rare Disease Advisory Council;
and Senator Baxley 576-02734-21 2021272c2 A bill to be entitled An act relating to the Rare Disease Advisory Council;
(2) The advisory council is composed of the following members:
(2) The advisory council is composed of the following members appointed by the Governor:
(a) As appointed by the Governor:
(a) A representative of the Department of Health.
1. A representative of the Department of Health.
(b) A representative of the Agency for Health Care Administration.
2. A representative of the Agency for Health Care Administration.
(c) A representative of the Office of Insurance Regulation.
3. A representative of the Office of Insurance Regulation.
(d) A representative of the Department of Education.
4. A representative of the Department of Education.
(e) Two representatives from academic research institutions in this state which receive any grant funding for research regarding rare diseases.
5. One geneticist practicing in this state.
(f) One geneticist practicing in this state.
6. One registered nurse or advanced practice registered nurse who is licensed and practicing in this state with experience in treating rare diseases.
(g) One registered nurse or advanced practice registered nurse who is licensed and practicing in this state with experience treating rare diseases.
7. One hospital administrator from a hospital in this state which provides care to individuals diagnosed with rare diseases.
(h) Two physicians who are licensed and practicing in this state with experience treating rare diseases.
8. A pharmacist who is licensed and practicing in this state who has experience with drugs that are used in the treatment of rare diseases.
(i) One hospital administrator from a hospital in this state which provides care to individuals diagnosed with rare diseases.
9. A representative of the biotechnology industry.
(j) Two individuals who are 18 years of age or older who have a rare disease.
10. A representative of health insurance companies.
(k) Two individuals who are caregivers of an individual with a rare disease.
(b) As appointed by the President of the Senate:
(l) Two representatives of organizations operating in this state which provide care or other support for individuals with rare diseases.
1. A representative from an academic research institution in this state which receives grant funding for research regarding rare diseases.
(m) A pharmacist who is licensed and practicing in this state who has experience with drugs that are used to treat rare diseases.
2. A physician who is licensed under chapter 458 or chapter 459 and practicing in this state with experience in treating rare diseases.
(n) A representative of the biotechnology industry.
3. An individual who is 18 years of age or older who has a rare disease.
(o) A representative of health insurance companies.
4. An individual who is a caregiver of an individual with a rare disease.
65 Any vacancy on the advisory council shall be filled in the same manner as the original appointment.
5. A representative of an organization operating in this state which provides care or other support to individuals with rare diseases.
(3) The initial members of the advisory council shall be appointed by September 1, 2021.
(c) As appointed by the Speaker of the House of Representatives:
Each member shall be appointed to a 4-year term of office.
1. A representative from an academic research institution in this state which receives grant funding for research regarding rare diseases.
However, in order to achieve staggered terms, the initial members appointed pursuant to paragraphs (2)(a)-(i) shall be appointed to a 2-year term.
2. A physician who is licensed under chapter 458 or chapter 459 and practicing in this state with experience in treating rare diseases.
3. An individual who is 18 years of age or older who has a rare disease.
4. An individual who is a caregiver of an individual with a rare disease.
5. A representative of organizations in this state which provide care or other support to individuals with rare diseases.
81 Any vacancy on the advisory council must be filled in the same manner as the original appointment.
(3) The initial members of the advisory council must be appointed by September 1, 2021.
Each member must be appointed to a 4-year term of office.
However, in order to achieve staggered terms, each of the initial members appointed pursuant to paragraph (2)(a) must be appointed to a 2-year term.
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Action History

  1. Chapter No. 2021-122

  2. Approved by Governor

  3. Signed by Officers and presented to Governor

  4. Ordered enrolled

  5. Message sent to senate

  6. CS passed; YEAS 117, NAYS 0

  7. Read 3rd time

  8. Added to Third Reading Calendar

  9. Placed on 3rd reading

  10. Read 2nd time

  11. 1st Reading (Committee Substitute 2)

  12. Bill added to Special Order Calendar (4/27/2021)

  13. Bill referred to House Calendar

  14. In Messages

  15. Immediately certified

  16. CS passed; YEAS 39 NAYS 0 -SJ 263, 264

  17. Read 3rd time

  18. Read 2nd time

  19. CS/CS by Appropriations read 1st time

  20. Placed on Special Order Calendar, 03/18/21

  21. Placed on Calendar, on 2nd reading

  22. Pending reference review -under Rule 4.7(2) - (Committee Substitute)

  23. CS/CS by- Appropriations; YEAS 18 NAYS 0

  24. On Committee agenda-- Appropriations, 03/11/21, 11:30 am, 412 Knott Building

  25. Now in Appropriations

  26. Subcommittee Recommendation: CS/CS by Appropriations Subcommittee on Health and Human Services; YEAS 10 NAYS 0

  27. CS by Health Policy read 1st time

  28. Introduced

  29. On Committee agenda-- Appropriations Subcommittee on Health and Human Services, 03/03/21, 2:30 pm, 412 Knott Building

  30. Now in Appropriations Subcommittee on Health and Human Services

  31. Pending reference review under Rule 4.7(2) - (Committee Substitute)

  32. CS by Health Policy; YEAS 9 NAYS 0

  33. On Committee agenda-- Health Policy, 02/04/21, 8:30 am, 412 Knott Building

  34. Referred to Health Policy; Appropriations Subcommittee on Health and Human Services; Appropriations

  35. Filed

Sponsors

  • Baxley · Primary

Sponsorship breakdown

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1 sponsors · 0 co-sponsors · 163 not signed on

Sponsors (1)

  • Baxley

Co-sponsors (0)

None.

Not signed on (163)

163 members have not signed on to this bill.

Show all 163 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Votes

Passage, Third Reading

Passed 117 Yea · 0 Nay · 3 Other
Party YeaNayPresentNot Voting
Unaffiliated 52002
Republican 45001
Democrat 20000
Total 117003
% of votes cast 98%0%0%3%
How each member voted (120)
Member Party Vote
Alexander — Yea
Aloupis — Yea
Geller — Yea
Altman — Yea
Goff-Marcil — Yea
Renner — Yea
Grant — Yea
Roach — Yea
Bell — Yea
Grieco — Yea
Beltran — Yea
Hage — Yea
Benjamin — Yea
Harding — Yea
Hardy — Yea
Rommel — Yea
Roth — Yea
Hawkins — Yea
Sabatini — Yea
Brown — Yea
Ingoglia — Yea
Silvers — Yea
Jenne — Yea
Bush — Yea
Byrd — Yea
Killebrew — Yea
Slosberg — Yea
Caruso — Yea
Casello — Yea
Latvala — Yea
Learned — Yea
Sprowls — Yea
Clemons — Yea
Stevenson — Yea
Diamond — Yea
Mariano — Yea
Toledo — Yea
Tomkow — Yea
Drake — Yea
DuBose — Yea
McCurdy — Yea
Willhite — Yea
Morales — Yea
Williams — Yea
Fernandez-Barquin — Yea
Williamson — Yea
Fetterhoff — Yea
Fine — Yea
Fischer — Yea
Payne — Yea
Zika — Yea
Duran — Not Voting
Omphroy — Not Voting
Thompson, Geraldine F. "Geri" — Yea
Arrington, Kristen Aston Democrat Yea
Bartleman, Robin Democrat Yea
Chambliss, Kevin D. Democrat Yea
Daley, Dan Democrat Yea
Davis, Tracie Democrat Yea
Driskell, Fentrice Democrat Yea
Eskamani, Dr. Anna V. Democrat Yea
Gottlieb, Michael "Mike" Democrat Yea
Gregory, Emily Democrat Yea
Hart-Lowman, Dianne "Ms Dee" Democrat Yea
Hinson, Yvonne Hayes Democrat Yea
Hunschofsky, Christine Democrat Yea
Joseph, Dotie Democrat Yea
Nixon, Angela "Angie" Democrat Yea
Rayner, Michele K. Democrat Yea
Robinson, Felicia Simone Democrat Yea
Skidmore, Kelly Democrat Yea
Smith, Carlos Guillermo Democrat Yea
Tant, Allison Democrat Yea
Woodson, Marie Paule Democrat Yea
Andrade, Robert Alexander "Alex" Republican Yea
Barnaby, Webster Republican Yea
Borrero, David Republican Yea
Botana, Adam Republican Yea
Brannan III, Robert Charles "Chuck" Republican Yea
Buchanan, James Republican Yea
Burton, Colleen Republican Yea
Busatta, Demi Republican Yea
Chaney, Linda Republican Not Voting
DiCeglie, Nick Republican Yea
Duggan, Wyman Republican Yea
Fabricio, Tom Republican Yea
Garrison, Sam Republican Yea
Giallombardo, Mike Republican Yea
Grall, Erin Republican Yea
Koster, Traci Republican Yea
LaMarca, Chip Republican Yea
Leek, Thomas J. "Tom" Republican Yea
Maggard, Randall Scott "Randy" Republican Yea
Maney, Patt Republican Yea
Massullo, Ralph E., Jr. Republican Yea
McClain, Stan Republican Yea
McClure, Lawrence Republican Yea
McFarland, Fiona Republican Yea
Melo, Lauren Republican Yea
Mooney Jr., James Vernon "Jim" Republican Yea
Overdorf, Tobin Rogers "Toby" Republican Yea
Perez, Daniel Republican Yea
Persons-Mulicka, Jenna Republican Yea
Plakon, Rachel Saunders Republican Yea
Plasencia, Susan Republican Yea
Rizo, Alex Republican Yea
Robinson Jr., William Cloud "Will" Republican Yea
Rodriguez, Ana Maria Republican Yea
Salzman, Michelle Republican Yea
Shoaf, Jason Republican Yea
Sirois, Tyler I. Republican Yea
Smith, David Republican Yea
Snyder, John Republican Yea
Trabulsy, Dana Republican Yea
Truenow, Keith L. Republican Yea
Trumbull, Jay Republican Yea
Tuck, Kaylee Republican Yea
Vacant Republican Yea
Valdés, Susan L. Republican Yea
Yarborough, Clay Republican Yea

Official roll call →

Third Reading

Passed 39 Yea · 0 Nay · 1 Other
Party YeaNayPresentNot Voting
Republican 12001
Unaffiliated 22000
Democrat 4000
No Party Affiliation 1000
Total 39001
% of votes cast 98%0%0%3%
How each member voted (40)
Member Party Vote
Diaz — Yea
Ausley — Yea
Farmer — Yea
Powell — Yea
Baxley — Yea
Gainer — Yea
Rodrigues — Yea
Bean — Yea
Gibson — Yea
Book — Yea
Stargel — Yea
Stewart — Yea
Bracy — Yea
Taddeo — Yea
Hutson — Yea
Thurston — Yea
Brandes — Yea
Torres — Yea
Broxson — Yea
Simpson — Yea
Perry — Yea
Cruz — Yea
Berman, Lori Democrat Yea
Jones, Shevrin D. "Shev" Democrat Yea
Polsky, Tina Scott Democrat Yea
Rouson, Darryl Ervin Democrat Yea
Pizzo, Jason W. B. No Party Affiliation Yea
Albritton, Ben Republican Yea
Boyd, Jim Republican Yea
Bradley, Jennifer Republican Yea
Brodeur, Jason Republican Yea
Burgess, Danny Republican Yea
Garcia, Ileana Republican Yea
Gruters, Joe Republican Not Voting
Harrell, Gayle Republican Yea
Hooper, Ed Republican Yea
Mayfield, Debbie Republican Yea
Passidomo, Kathleen Republican Yea
Rodriguez, Ana Maria Republican Yea
Wright, Tom A. Republican Yea

Official roll call →

Favorable with Committee Substitute

Passed 18 Yea · 0 Nay · 2 Other
Party YeaNayPresentNot Voting
Republican 4000
Unaffiliated 12002
No Party Affiliation 1000
Democrat 1000
Total 18002
% of votes cast 90%0%0%10%
How each member voted (20)
Member Party Vote
Book — Yea
Bracy — Yea
Brandes — Yea
Broxson — Yea
Diaz — Yea
Farmer — Yea
Gainer — Yea
Hutson — Yea
Perry — Yea
Powell — Yea
Stewart — Yea
Stargel — Yea
Gibson — Not Voting
Bean — Not Voting
Rouson, Darryl Ervin Democrat Yea
Pizzo, Jason W. B. No Party Affiliation Yea
Albritton, Ben Republican Yea
Hooper, Ed Republican Yea
Mayfield, Debbie Republican Yea
Passidomo, Kathleen Republican Yea

Official roll call →

Favorable with Committee Substitute

Passed 10 Yea · 0 Nay · 1 Other
Party YeaNayPresentNot Voting
Unaffiliated 4001
Republican 4000
Democrat 2000
Total 10001
% of votes cast 91%0%0%9%
How each member voted (11)
Member Party Vote
Book — Yea
Diaz — Yea
Farmer — Yea
Rodrigues — Yea
Bean — Not Voting
Jones, Shevrin D. "Shev" Democrat Yea
Rouson, Darryl Ervin Democrat Yea
Brodeur, Jason Republican Yea
Burgess, Danny Republican Yea
Harrell, Gayle Republican Yea
Rodriguez, Ana Maria Republican Yea

Official roll call →

Subjects

healthcare health-insurance
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Frequently asked questions

What does SB 272 do?
Rare Disease Advisory Council; Creating the advisory council adjunct to the Department of Health; specifying the purpose of the advisory council; defining the term “rare disease”; prescribing duties and responsibilities of the advisory council, etc.
Who sponsors SB 272?
SB 272 is sponsored by Baxley.
What is the current status of SB 272?
This bill has been enacted into law. Introduced December 15, 2020. Enacted.
Where can I track SB 272?
Track SB 272 free on One Click Politics — get push/email alerts when it moves.

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