SB 980 is sponsored by Umberg, Thomas J. (Democratic), Bauer-Kahan, Rebecca (Democratic), Gabriel, Jesse (Democratic), and Allen, Benjamin (Democratic).

Where can I track SB 980?

Track SB 980 free on One Click Politics — get push/email alerts when it moves.

California 2019-2020 Regular Session Status: To Executive 4 D cosponsors

SB 980 — Privacy: genetic testing companies.

Last action September 25, 2020 — In Senate. Consideration of Governor's veto pending.

✓
Introduced
✓
In Committee
✓
Passed Senate
✓
Passed Assembly
5
To Executive
6
Enacted

This bill died with 2019-2020 Regular Session. It reached “To Executive” and never advanced before the session ended, so it can no longer move — a new version would have to be reintroduced in the current session.

This bill is no longer active — its legislative session has ended, so there is no live prognosis. It would have to be reintroduced in the current session to move again.

Summary

Existing law, the California Consumer Privacy Act of 2018, provides various protections to a consumer with respect to a business that collects the consumer's personal information, including biometric information such as the consumer's deoxyribonucleic acid (DNA) . The act requires a business that collects a consumer's personal information to, at or before the point of collection, inform the consumer as to the categories of personal information to be collected and the purposes for which the information will be used, and grants to a consumer the right to opt-out of the sale of the consumer's personal information by the business to a third party. Existing law also prohibits the disclosure by a health care service plan of the results of a test for a genetic characteristic to a third party in a manner that identifies or provides identifying characteristics of the person to whom the tests results apply, except pursuant to a written authorization. This bill would establish the Genetic Information Privacy Act, which would require a direct-to-consumer genetic testing company, as defined, or any other company that collects, uses, maintains, or discloses genetic data collected or derived from a direct-to-consumer genetic testing product or service, or provided directly by a consumer, to provide a consumer with certain information regarding the company's policies and procedures for the collection, use, maintenance, and disclosure, as applicable, of genetic data, and to obtain a consumer's express consent for collection, use, or disclosure of the consumer's genetic data, as specified. This bill would require a direct-to-consumer genetic testing company, or other company as described above, to honor a consumer's revocation of consent in accordance with certain procedures and to destroy a consumer's biological sample within 30 days of revocation of consent. The bill would further require a direct-to-consumer genetic testing company, or other company as described above, to comply with all applicable laws for disclosing genetic data to law enforcement without a consumer's express consent, implement and maintain reasonable security procedures and practices to protect a consumer's genetic data against unauthorized access, destruction, use, modification, or disclosure, and develop procedures and practices to enable a consumer to access their genetic data and to delete their account and genetic data, as specified. The bill would exclude the California newborn screening program from its provisions. This bill would impose civil penalties for a violation of those provisions, as specified. The bill would require actions for relief pursuant to these provisions to be prosecuted exclusively by the Attorney General, a district attorney, county counsel, city attorney, or city prosecutor, as specified, in the name of the people of the State of California upon their own complaint or upon the complaint of a board, officer, person, corporation, or association. Because the bill would require local officials to perform additional duties, the bill would impose a state-mandated local program. The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement. This bill would provide that, if the Commission on State Mandates determines that the bill contains costs mandated by the state, reimbursement for those costs shall be made pursuant to the statutory provisions noted above.

Bill Text

Enrolled 09/03/20 - Enrolled Current pdf September 03, 2020
Amended 08/25/20 - Amended Assembly pdf August 25, 2020
Amended 08/10/20 - Amended Assembly pdf August 10, 2020
Amended 08/03/20 - Amended Assembly pdf August 03, 2020
Amended 07/27/20 - Amended Assembly pdf July 27, 2020
Amended 06/18/20 - Amended Senate pdf June 18, 2020
Amended 05/29/20 - Amended Senate pdf May 29, 2020
Amended 04/30/20 - Amended Senate pdf April 30, 2020
Amended 03/17/20 - Amended Senate pdf March 17, 2020
Introduced 02/11/20 - Introduced pdf February 11, 2020
SB980 View text html

Action History

September 25, 2020
In Senate. Consideration of Governor's veto pending.
September 25, 2020
Vetoed by the Governor.
September 09, 2020
Enrolled and presented to the Governor at 3 p.m.
August 31, 2020
Assembly amendments concurred in. (Ayes 39. Noes 0.) Ordered to engrossing and enrolling.
August 30, 2020
In Senate. Concurrence in Assembly amendments pending.
August 30, 2020
Read third time. Passed. (Ayes 69. Noes 0. Page 5307.) Ordered to the Senate.
August 25, 2020
Ordered to third reading.
August 25, 2020
Read third time and amended.
August 24, 2020
Read second time. Ordered to third reading.
August 20, 2020
From committee: Do pass. (Ayes 15. Noes 1.) (August 20).
August 18, 2020
August 18 set for first hearing. Placed on suspense file.
August 10, 2020
Read second time and amended. Re-referred to Com. on APPR.
August 06, 2020
From committee: Do pass as amended and re-refer to Com. on APPR. (Ayes 10. Noes 0.) (August 4).
August 03, 2020
From committee with author's amendments. Read second time and amended. Re-referred to Com. on P. & C.P.
July 28, 2020
July 28 hearing postponed by committee.
July 27, 2020
From committee with author's amendments. Read second time and amended. Re-referred to Com. on P. & C.P.
July 09, 2020
July 14 hearing postponed by committee.
June 29, 2020
Referred to Com. on P. & C.P.
June 25, 2020
In Assembly. Read first time. Held at Desk.
June 25, 2020
Read third time. Passed. (Ayes 36. Noes 1. Page 3864.) Ordered to the Assembly.
June 22, 2020
Read second time. Ordered to third reading.
June 18, 2020
Read second time and amended. Ordered to second reading.
June 18, 2020
From committee: Do pass as amended. (Ayes 5. Noes 1. Page 3768.) (June 18).
June 11, 2020
Set for hearing June 18.
June 09, 2020
June 9 hearing: Placed on APPR. suspense file.
June 03, 2020
Set for hearing June 9.
May 29, 2020
Read second time and amended. Re-referred to Com. on APPR.
May 28, 2020
From committee: Do pass as amended and re-refer to Com. on APPR. (Ayes 7. Noes 1. Page 3583.) (May 22).
May 12, 2020
Referral to Com. on PUB. S. rescinded due to the shortened 2020 Legislative Calendar.
May 12, 2020
Set for hearing May 22.
April 30, 2020
From committee with author's amendments. Read second time and amended. Re-referred to Com. on JUD.
March 17, 2020
From committee with author's amendments. Read second time and amended. Re-referred to Com. on JUD.
February 20, 2020
Referred to Coms. on JUD. and PUB. S.
February 12, 2020
From printer. May be acted upon on or after March 13.
February 11, 2020
Introduced. Read first time. To Com. on RLS. for assignment. To print.

Sponsorship breakdown

Export CSV (upgrade) →

1 sponsors · 3 co-sponsors · 118 not signed on · 1 voted No

Sponsors (1)

Umberg, Thomas J. Democratic

Co-sponsors (3)

Bauer-Kahan, Rebecca Democratic
Gabriel, Jesse Democratic
Allen, Benjamin Democratic

Not signed on (118)

118 members have not signed on to this bill.

Show all 118 →

"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

Whip count is in markup. Polling the chamber and every recorded vote this session. Only the first open is slow. It’s instant for you after this. Calling the roll · Tallying · Engrossing

Votes

Unfinished Business SB980 Umberg et al. Concurrence

August 31, 2020

Passed 39 Yea · 0 Nay · 1 Other

Party	Yea	Nay	Present	Not Voting
Unaffiliated	27	0	0	0
Democratic	10	0	0	0
Republican	2	0	0	1
Total	39	0	0	1
% of votes cast	98%	0%	0%	3%

How each member voted (40)

Member	Party	Vote
Roth	—	Yea
Galgiani	—	Yea
Bates	—	Yea
Portantino	—	Yea
Rubio	—	Yea
Atkins	—	Yea
Wieckowski	—	Yea
Wilk	—	Yea
Hertzberg	—	Yea
Pan	—	Yea
Mitchell	—	Yea
Monning	—	Yea
Glazer	—	Yea
Borgeas	—	Yea
Beall	—	Yea
Hueso	—	Yea
Moorlach	—	Yea
Morrell	—	Yea
Leyva	—	Yea
Allen	—	Yea
Chang	—	Yea
Bradford	—	Yea
Melendez	—	Yea
Skinner	—	Yea
Dodd	—	Yea
Nielsen	—	Yea
Hill	—	Yea
Archuleta, Bob	Democratic	Yea
Caballero, Anna M.	Democratic	Yea
Durazo, Maria Elena	Democratic	Yea
Gonzalez, Lena A.	Democratic	Yea
Hurtado, Melissa	Democratic	Yea
Jackson, Corey A.	Democratic	Yea
McGuire, Mike	Democratic	Yea
Stern, Henry I.	Democratic	Yea
Umberg, Thomas J.	Democratic	Yea
Wiener, Scott D.	Democratic	Yea
Dahle, Megan	Republican	Yea
Grove, Shannon	Republican	Yea
Jones, Brian W.	Republican	Not Voting

Official roll call →

SB 980 Umberg Senate Third Reading By Gabriel

August 31, 2020

Passed 69 Yea · 0 Nay · 10 Other

Party	Yea	Nay	Present	Not Voting
Unaffiliated	44	0	0	7
Democratic	21	0	0	1
Republican	4	0	0	2
Total	69	0	0	10
% of votes cast	87%	0%	0%	13%

How each member voted (79)

Member	Party	Vote
Jones-Sawyer	—	Yea
Levine	—	Yea
Mayes	—	Yea
Weber	—	Yea
Mullin	—	Yea
Obernolte	—	Yea
Salas	—	Yea
Cunningham	—	Yea
O'Donnell	—	Yea
Rendon	—	Yea
Bloom	—	Yea
Gonzalez	—	Yea
Maienschein	—	Yea
Ting	—	Yea
Cooper	—	Yea
Kamlager	—	Yea
Nazarian	—	Yea
Brough	—	Yea
Friedman	—	Yea
Low	—	Yea
Diep	—	Yea
Cooley	—	Yea
Santiago	—	Yea
Chu	—	Yea
Chau	—	Yea
Waldron	—	Yea
Burke	—	Yea
Mathis	—	Yea
Kiley	—	Yea
Medina	—	Yea
Gloria	—	Yea
McCarty	—	Yea
Chiu	—	Yea
Quirk	—	Yea
Daly	—	Yea
Wood	—	Yea
Rodriguez	—	Yea
Holden	—	Yea
Smith	—	Yea
Eggman	—	Not Voting
Frazier	—	Not Voting
Gray	—	Not Voting
Fong	—	Not Voting
Bigelow	—	Not Voting
Voepel	—	Not Voting
Cristina Garcia	—	Yea
Eduardo Garcia	—	Yea
Jim Patterson	—	Not Voting
Luz Rivas	—	Yea
Mark Stone	—	Yea
Wendy Carrillo	—	Yea
Aguiar-Curry, Cecilia M.	Democratic	Yea
Arambula, Joaquin	Democratic	Yea
Bauer-Kahan, Rebecca	Democratic	Yea
Berman, Marc	Democratic	Yea
Boerner, Tasha	Democratic	Yea
Bonta, Mia	Democratic	Yea
Calderon, Lisa	Democratic	Yea
Cervantes, Sabrina	Democratic	Yea
Gabriel, Jesse	Democratic	Yea
Gipson, Mike A.	Democratic	Yea
Grayson, Timothy S.	Democratic	Yea
Irwin, Jacqui	Democratic	Yea
Kalra, Ash	Democratic	Yea
Limón, Monique	Democratic	Yea
Muratsuchi, Al	Democratic	Yea
Petrie-Norris, Cottie	Democratic	Yea
Quirk-Silva, Sharon	Democratic	Yea
Ramos, James C.	Democratic	Yea
Reyes, Eloise Gómez	Democratic	Yea
Rivas, Robert	Democratic	Yea
Rubio, Blanca E.	Democratic	Yea
Wicks, Buffy	Democratic	Not Voting
Chen, Phillip	Republican	Not Voting
Choi, Steven S.	Republican	Not Voting
Dahle, Megan	Republican	Yea
Flora, Heath	Republican	Yea
Gallagher, James	Republican	Yea
Lackey, Tom	Republican	Yea

Official roll call →

Do pass.

August 20, 2020

Passed 15 Yea · 1 Nay · 2 Other

Party	Yea	Nay	Present	Not Voting
Democratic	6	0	0	0
Unaffiliated	8	1	0	2
Republican	1	0	0	0
Total	15	1	0	2
% of votes cast	83%	6%	0%	11%

How each member voted (18)

Member	Party	Vote
Quirk	—	Yea
Gonzalez	—	Yea
Diep	—	Yea
Bloom	—	Yea
Chau	—	Yea
Eggman	—	Yea
Bigelow	—	Nay
Voepel	—	Not Voting
Fong	—	Not Voting
Eduardo Garcia	—	Yea
Wendy Carrillo	—	Yea
Bauer-Kahan, Rebecca	Democratic	Yea
Bonta, Mia	Democratic	Yea
Calderon, Lisa	Democratic	Yea
Gabriel, Jesse	Democratic	Yea
Petrie-Norris, Cottie	Democratic	Yea
Rivas, Robert	Democratic	Yea
Dahle, Megan	Republican	Yea

Official roll call →

Do pass as amended and be re-referred to the Committee on [Appropriations]

August 04, 2020

Passed 10 Yea · 0 Nay · 1 Other

Party	Yea	Nay	Present	Not Voting
Democratic	5	0	0	0
Unaffiliated	5	0	0	0
Republican	0	0	0	1
Total	10	0	0	1
% of votes cast	91%	0%	0%	9%

How each member voted (11)

Member	Party	Vote
Friedman	—	Yea
Kiley	—	Yea
Chau	—	Yea
Obernolte	—	Yea
Wendy Carrillo	—	Yea
Bauer-Kahan, Rebecca	Democratic	Yea
Berman, Marc	Democratic	Yea
Calderon, Lisa	Democratic	Yea
Gabriel, Jesse	Democratic	Yea
Irwin, Jacqui	Democratic	Yea
Gallagher, James	Republican	Not Voting

Official roll call →

3rd Reading SB980 Umberg et al.

June 25, 2020

Passed 36 Yea · 1 Nay · 3 Other

Party	Yea	Nay	Present	Not Voting
Unaffiliated	25	0	0	2
Democratic	10	0	0	0
Republican	1	1	0	1
Total	36	1	0	3
% of votes cast	90%	3%	0%	8%

How each member voted (40)

Member	Party	Vote
Chang	—	Yea
Leyva	—	Yea
Atkins	—	Yea
Skinner	—	Yea
Allen	—	Yea
Dodd	—	Yea
Hertzberg	—	Yea
Glazer	—	Yea
Borgeas	—	Yea
Roth	—	Yea
Morrell	—	Yea
Rubio	—	Yea
Wilk	—	Yea
Hill	—	Yea
Pan	—	Yea
Beall	—	Yea
Wieckowski	—	Yea
Bates	—	Yea
Monning	—	Yea
Melendez	—	Yea
Nielsen	—	Yea
Portantino	—	Yea
Moorlach	—	Yea
Bradford	—	Yea
Hueso	—	Yea
Mitchell	—	Not Voting
Galgiani	—	Not Voting
Archuleta, Bob	Democratic	Yea
Caballero, Anna M.	Democratic	Yea
Durazo, Maria Elena	Democratic	Yea
Gonzalez, Lena A.	Democratic	Yea
Hurtado, Melissa	Democratic	Yea
Jackson, Corey A.	Democratic	Yea
McGuire, Mike	Democratic	Yea
Stern, Henry I.	Democratic	Yea
Umberg, Thomas J.	Democratic	Yea
Wiener, Scott D.	Democratic	Yea
Dahle, Megan	Republican	Yea
Grove, Shannon	Republican	Not Voting
Jones, Brian W.	Republican	Nay

Official roll call →

Do pass as amended

June 18, 2020

Passed 5 Yea · 1 Nay · 1 Other

Party	Yea	Nay	Present	Not Voting
Unaffiliated	5	0	0	1
Republican	0	1	0	0
Total	5	1	0	1
% of votes cast	71%	14%	0%	14%

How each member voted (7)

Member	Party	Vote
Leyva	—	Yea
Wieckowski	—	Yea
Hill	—	Yea
Portantino	—	Yea
Bradford	—	Yea
Bates	—	Not Voting
Jones, Brian W.	Republican	Nay

Official roll call →

Placed on suspense file

June 09, 2020

Passed 7 Yea · 0 Nay

Party	Yea	Nay	Present	Not Voting
Republican	1	0	0	0
Unaffiliated	6	0	0	0
Total	7	0	0	0
% of votes cast	100%	0%	0%	0%

How each member voted (7)

Member	Party	Vote
Leyva	—	Yea
Wieckowski	—	Yea
Hill	—	Yea
Portantino	—	Yea
Bates	—	Yea
Bradford	—	Yea
Jones, Brian W.	Republican	Yea

Official roll call →

Do pass as amended, but first amend, and re-refer to the Committee on [Appropriations]

May 22, 2020

Passed 7 Yea · 1 Nay · 1 Other

Party	Yea	Nay	Present	Not Voting
Unaffiliated	2	0	0	1
Democratic	5	0	0	0
Republican	0	1	0	0
Total	7	1	0	1
% of votes cast	78%	11%	0%	11%

How each member voted (9)

Member	Party	Vote
Monning	—	Yea
Wieckowski	—	Yea
Borgeas	—	Not Voting
Durazo, Maria Elena	Democratic	Yea
Gonzalez, Lena A.	Democratic	Yea
Jackson, Corey A.	Democratic	Yea
Stern, Henry I.	Democratic	Yea
Umberg, Thomas J.	Democratic	Yea
Jones, Brian W.	Republican	Nay

Official roll call →

Subjects

civil-rights healthcare technology

Cross-referencing the record. Reading this bill against every other bill in the corpus by meaning, not keywords. Only the first open is slow. It’s instant for you after this. Matching · Ranking · Engrossing

Frequently asked questions

What does SB 980 do?: Existing law, the California Consumer Privacy Act of 2018, provides various protections to a consumer with respect to a business that collects the consumer's personal information, including biometric information such as the consumer's deoxyribonucleic acid (DNA) . The act requires a business that collects a consumer's personal information to, at or before the point of collection, inform the consumer as to the categories of personal information to be collected and the purposes for which the information will be used, and grants to a consumer the right to opt-out of the sale of the consumer's personal information by the business to a third party. Existing law also prohibits the disclosure by a health care service plan of the results of a test for a genetic characteristic to a third party in a manner that identifies or provides identifying characteristics of the person to whom the tests results apply, except pursuant to a written authorization. This bill would establish the Genetic Information Privacy Act, which would require a direct-to-consumer genetic testing company, as defined, or any other company that collects, uses, maintains, or discloses genetic data collected or derived from a direct-to-consumer genetic testing product or service, or provided directly by a consumer, to provide a consumer with certain information regarding the company's policies and procedures for the collection, use, maintenance, and disclosure, as applicable, of genetic data, and to obtain a consumer's express consent for collection, use, or disclosure of the consumer's genetic data, as specified. This bill would require a direct-to-consumer genetic testing company, or other company as described above, to honor a consumer's revocation of consent in accordance with certain procedures and to destroy a consumer's biological sample within 30 days of revocation of consent. The bill would further require a direct-to-consumer genetic testing company, or other company as described above, to comply with all applicable laws for disclosing genetic data to law enforcement without a consumer's express consent, implement and maintain reasonable security procedures and practices to protect a consumer's genetic data against unauthorized access, destruction, use, modification, or disclosure, and develop procedures and practices to enable a consumer to access their genetic data and to delete their account and genetic data, as specified. The bill would exclude the California newborn screening program from its provisions. This bill would impose civil penalties for a violation of those provisions, as specified. The bill would require actions for relief pursuant to these provisions to be prosecuted exclusively by the Attorney General, a district attorney, county counsel, city attorney, or city prosecutor, as specified, in the name of the people of the State of California upon their own complaint or upon the complaint of a board, officer, person, corporation, or association. Because the bill would require local officials to perform additional duties, the bill would impose a state-mandated local program. The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement. This bill would provide that, if the Commission on State Mandates determines that the bill contains costs mandated by the state, reimbursement for those costs shall be made pursuant to the statutory provisions noted above.
Who sponsors SB 980?: SB 980 is sponsored by Umberg, Thomas J. (Democratic), Bauer-Kahan, Rebecca (Democratic), Gabriel, Jesse (Democratic), and Allen, Benjamin (Democratic).
What is the current status of SB 980?: This bill died with 2019-2020 Regular Session. It reached “To Executive” and never advanced before the session ended, so it can no longer move — a new version would have to be reintroduced in the current session.
Where can I track SB 980?: Track SB 980 free on One Click Politics — get push/email alerts when it moves.

Keep track of this bill

Add this bill to your alerts and we'll email you when it moves — or keep it on a watchlist and see it in your weekly digest.

Create a free account →

At a glance

Identifier: SB 980
Jurisdiction: California
Session: 2019-2020 Regular Session
Type: Bill
Introduced: February 11, 2020
Status: To Executive
Prime sponsor: Umberg, Thomas J.

Make your voice heard on SB 980

Find the representatives who decide this bill and tell them where you stand — for yourself, or mobilize your whole list in one click with One Click Politics advocacy software.

Find my representatives → Run a campaign

Stay ahead of SB 980

Last checked for changes 2 months ago · updated continuously

One Click Politics tracks every bill in Congress and all 50 states.

Track this bill →