SR 191 — SPECIAL DAY/WEEK/MONTH: Designates Thursday, May 28, 2026, as IgA Nephropathy Awareness Day in Louisiana.

SLS 26RS-4620 ORIGINAL Regular Session ENROLLED SENATE RESOLUTION NO.

191 BY SENATOR OWEN SPECIALDAY/WEEK/MONTH.DesignatesThursday,May28,2026,asIgANephropathyA RESOLUTION To designate Thursday, May 28, 2026, as IgA Nephropathy Awareness DayinDay in Louisiana.

A RESOLUTION To designate Thursday, May 28, 2026, as IgA Nephropathy Awareness Day in Louisiana.

and WHEREAS,atleast15WHEREAS, percentofMedicarebeneficiarieshavebeendiagnosedwithatleast15percentofMedicarebeneficiarieshavebeendiagnosedwith chronic kidney disease;

and WHEREAS,patientswithglomerulardiseasesfrequentlyadvancetomorecostlyand debilitating later stages of kidneydisease,kidney disease, including end-stage renal disease (ESRD), more quickly than patients with CKD in general, with estimates suggesting that rare kidney diseases make up 5 to 10 percentofCKDpatientspercentof butCKDpatientsbut accountaccountforapproximately25 for approximately25 percent of patients receiving treatment for kidney failure;

and WHEREAS, patients often face delays in being diagnosed with IgAN and other immune-mediated kidney diseases, owing to the difficulty of the rare disease diagnostic odyssey, the limited number of nephrology providers, and lack of awareness about the Pagecauses 1 of 3kidney SLSdisease; 26RS-4620 ORIGINAL SR NO.

191and causesWHEREAS, kidneydisease, includingIgAN, presents a significant burden not only on the health and lives of kidneypatients disease;and their families, but also incurs great challenges for the healthcare system and healthcare costs, with estimates suggesting that patients with IgAN-attributed ESRD have health costs exceeding $63,000 a year;

and WHEREAS, kidneydisease,while includingthe IgAN,federal presentsMedicare aprogram significantcovers burden not only on the healthcosts and lives of patientsdialysis andfor theirmanypatientswithESRD,45percentofESRDpatientsareduallyeligibleforMedicareand families,Medicaid, butand alsoESRD incursis greata challengessignificant forsource theof healthcaredisability, system and healthcare costs, with estimatesESRD suggesting that patients withemployed IgAN-attributedat ESRDonly haveone-fifth healththe costsrate exceedingof $63,000the ageneral year;population;

and WHEREAS,Page while1 the federal Medicare program covers the costs of dialysis2 forSR manypatientswithESRD,45percentofESRDpatientsareduallyeligible,forMedicareandNO. Medicaid, and ESRD is a significant source of disability, with ESRD patients employed at only one-fifth the rate of the general population;

and191 ENROLLED WHEREAS, kidney disease patients are entering a new era of hope, including for rare diseases, with multiple therapies now approved bybythe the Food and Drug Administration to slow the progression of CKD and multiple drugs approved to slow the progression of IgAN specifically;

to support efforts to improve policies that may increase access to screening, diagnosis, andtreatmentforand kidneydisease;treatment for kidneydisease;andto providehope and inspiration to patients, caregivers,andadvocatesworkingtirelesslytoadvanceawarenessandbettercareforkidney disease.

and to provide hope and inspiration topatients, caregivers,andadvocatesworkingtirelesslytoadvanceawarenessandbettercareforkidney disease.

PagePRESIDENT 2OF ofTHE 3SENATE SLSPage 26RS-46202 ORIGINALof SR2 NO.

191 The original instrument and the following digest, which constitutes no part of the legislative instrument, were prepared bySenate Legislative Services.

The keyword, summary, and digest do not constitute part of the law or proof or indicia of legislative intent.

[R.S.

1:13(B) and 24:177(E)] DIGEST SR 191 Original 2026 Regular Session Owen Designates Thursday, May 28, 2026, as IgA Nephropathy Awareness Dayin Louisiana.

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