United States 113th Congress Status: Enacted 1 R cosponsors

HR 594 — Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Last action — Became Public Law No: 113-166.

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  1. ✓
    Introduced
  2. ✓
    In Committee
  3. ✓
    Passed House
  4. ✓
    Passed Senate
  5. ✓
    To Executive
  6. 6
    Enacted

This bill has been enacted into law. Introduced February 08, 2013. Enacted.

Summary

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers. Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living. Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy. (Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner. (Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.

Bill Text

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Read HR 594 on the official United States source →

Action History

  1. Became Public Law No: 113-166.

  2. Signed by President.

  3. Presented to President.

  4. Message on Senate action sent to the House.

  5. Passed Senate without amendment by Unanimous Consent. (consideration: CR S5862)

  6. Read twice. Placed on Senate Legislative Calendar under General Orders. Calendar No. 529.

  7. Received in the Senate.

  8. The Speaker announced the title of H.R. 594 was amended in the form at the desk. Agreed to without objection.

  9. The title of the measure was amended. Agreed to without objection.

  10. Motion to reconsider laid on the table Agreed to without objection.

  11. On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H6933)

  12. DEBATE - The House proceeded with forty minutes of debate on H.R. 594.

  13. Considered under suspension of the rules. (consideration: CR H6933-6935)

  14. Mr. Burgess moved to suspend the rules and pass the bill, as amended.

  15. Placed on the Union Calendar, Calendar No. 416.

  16. Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-556.

  17. Ordered to be Reported (Amended) by Voice Vote.

  18. Committee Consideration and Mark-up Session Held.

  19. Committee Consideration and Mark-up Session Held.

  20. Forwarded by Subcommittee to Full Committee (Amended) by Unanimous Consent .

  21. Subcommittee Consideration and Mark-up Session Held.

  22. Referred to the Subcommittee on Health.

  23. Referred to the House Committee on Energy and Commerce.

Sponsors

Sponsorship breakdown

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1 sponsors · 0 co-sponsors · 546 not signed on

Sponsors (1)

Co-sponsors (0)

None.

Not signed on (546)

546 members have not signed on to this bill.

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"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

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Frequently asked questions

What does HR 594 do?
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers. Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living. Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy. (Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner. (Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.
Who sponsors HR 594?
HR 594 is sponsored by Michael Burgess (R).
What is the current status of HR 594?
This bill has been enacted into law. Introduced February 08, 2013. Enacted.
Where can I track HR 594?
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