S 1130 — Scarlett's Sunshine on Sudden Unexpected Death Act

[Congressional[116th BillsCongress 116thPublic Congress]Law 273] [From the U.S.

Government Publishing Office] [S.[[Page 3351]] SCARLETT'S SUNSHINE ON SUDDEN UNEXPECTED DEATH ACT [[Page 134 STAT.

11303352]] EngrossedPublic AmendmentLaw House116-273 (EAH)]116th <DOC>Congress InAn Act To amend the HousePublic Health Service Act to improve the health of Representatives,children U.and help better understand and enhance awareness about unexpected sudden death in early life.

S.,<<NOTE: December 10, 2020.

Resolved,Dec. That the bill from the Senate (S.

1130)31, entitled2020 ``An- Act[S. to amend the Public Health Service Act to improve the health of children and help better understand and enhance awareness about unexpected sudden death in early life.'', do pass with the following AMENDMENT:

Strike1130]>> allBe afterit sectionenacted 1by the Senate and insertHouse of Representatives of the following:United States of America in Congress assembled, <<NOTE:

Scarlett's Sunshine on Sudden Unexpected Death Act.>> SECTION 1.

<<NOTE:

42 USC 201 note.>> SHORT TITLE.

This Act may be cited as the ``Scarlett's Sunshine on Sudden Unexpected Death Act''.

ADDRESSING<<NOTE: SUDDEN UNEXPECTED INFANT DEATH AND SUDDEN UNEXPECTED DEATH IN CHILDHOOD.

42 USC 300c-11.>> ADDRESSING SUDDEN UNEXPECTED INFANT DEATH AND SUDDEN UNEXPECTED DEATH IN CHILDHOOD.

and ``(ii) making the data submitted to such registries or systems available to researchers, in a manner that, at[[Page a134 minimum,STAT. protects personal privacy to the extent required by applicable Federal and State law;

and3353]] ``(2)at awardinga grantsminimum, orprotects cooperativepersonal agreementsprivacy to States,the Indianextent Tribes,required andby Tribalapplicable organizationsFederal for purposes of-- ``(A) supporting fetal and infantState mortalitylaw; and child death review programs for sudden unexpected infant death and sudden unexpected death in childhood, including by establishing such programs at the local level;

and ``(2) <<NOTE:

Grants.>> awarding grants or cooperative agreements to States, Indian Tribes, and Tribal organizations for purposes of-- ``(A) supporting fetal and infant mortality and child death review programs for sudden unexpected infant death and sudden unexpected death in childhood, including by establishing such programs at the local level;

``(E) disseminating information and materials to health care professionals and the public on risk factors that contribute to sudden unexpected infant death and sudden unexpected death in childhood, which may include information on risk factors that contribute to sleep-relatedsleep- related sudden unexpected infant death or sudden unexpected death in childhood;

``(b) Application.--To<<NOTE: be eligible to receive a grant or cooperative agreement under subsection (a)(2), a State, Indian Tribe, or Tribal organization shall submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require, including information on how such State will ensure activities conducted under this section are coordinated with other federally-funded programs to reduce infant and child mortality, as appropriate.

Coordination.>> Application.--To be eligible to receive a grant or cooperative agreement under subsection (a)(2), a State, Indian Tribe, or Tribal organization shall submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require, including information on how such State will ensure activities conducted under this section are coordinated with other federally-funded programs to reduce infant and child mortality, as appropriate.

``(d) Reporting Forms.-- ``(1)[[Page In134 general.--TheSTAT. Secretary shall, as appropriate, encourage the use of sudden unexpected infant death and sudden unexpected death in childhood reporting forms developed in collaboration with the Centers for Disease Control and Prevention to improve the quality of data submitted to the Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry, and other fatality case reporting systems that include data pertaining to sudden unexpected infant death and sudden unexpected death in childhood.

``(2)3354]] Update``(1) ofIn forms.--Thegeneral.--The Secretary shallshall, assessas whetherappropriate, updatesencourage arethe neededuse toof the sudden unexpected infant death investigationand sudden unexpected death in childhood reporting formforms useddeveloped byin collaboration with the Centers for Disease Control and Prevention in order to improve the usequality of suchdata formsubmitted withto the Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry, and other fatality case reporting systems supportedthat byinclude thedata Departmentpertaining ofto Healthsudden andunexpected Humaninfant Services,death and shallsudden makeunexpected suchdeath updatesin aschildhood. appropriate.

``(2) <<NOTE:

Assessment.>> Update of forms.--The Secretary shall assess whether updates are needed to the sudden unexpected infant death investigation reporting form used by the Centers for Disease Control and Prevention in order to improve the use of such form with other fatality case reporting systems supported by the Department of Health and Human Services, and shall make such updates as appropriate.

REPORT<<NOTE: TO CONGRESS.

(a)42 InUSC General.--Not300c-14.>> laterREPORT thanTO 2CONGRESS. years after the date of enactment of this Act and biennially thereafter, the Secretary of Health and Human Services shall submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives a report that contains, with respect to the reporting period-- (1) information regarding the incidence and number of sudden unexpected infant death and sudden unexpected death in childhood (including the number of such infant and child deaths that remain unexplained after investigation), including, to the extent practicable-- (A) a summary of such information by racial and ethnic group, and by State;

(B)(a) aggregateIn General.--Not later than 2 years after the date of enactment of this Act and biennially thereafter, the Secretary of Health and Human Services shall submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives a report that contains, with respect to the reporting period-- (1) information obtainedregarding fromthe incidence and number of sudden unexpected infant death sceneand investigationssudden unexpected death in childhood (including the number of such infant and autopsies;child deaths that remain unexplained after investigation), including, to the extent practicable-- (A) <<NOTE:

andSummary.>> (C)a recommendationssummary for reducing the incidence of suddensuch unexpectedinformation infantby deathracial and suddenethnic unexpectedgroup, deathand inby childhood;State;

(2)[[Page an134 assessmentSTAT. of the extent to which various approaches of reducing and preventing sudden unexpected infant death and sudden unexpected death in childhood have been effective;

3355]] (B) aggregate information obtained from death scene investigations and autopsies;

and (C) <<NOTE:

Recommenda- tions.>> recommendations for reducing the incidence of sudden unexpected infant death and sudden unexpected death in childhood;

(2) <<NOTE:

Assessment.>> an assessment of the extent to which various approaches of reducing and preventing sudden unexpected infant death and sudden unexpected death in childhood have been effective;

Attest:Approved December 31, 2020.

Clerk.LEGISLATIVE HISTORY--S.

116th1130 CONGRESS(H.R. 2d Session S.

11302271): _______________________________________________________________________ AMENDMENT

--------------------------------------------------------------------------- HOUSE REPORTS:

No.