United States 118th Congress Status: In Committee Bipartisan · 77 D · 25 R cosponsors

HR 620 — Alzheimer’s Accountability and Investment Act

Last action — Placed on the Union Calendar, Calendar No. 442.

  1. ✓
    Introduced
  2. 2
    In Committee
  3. 3
    Passed House
  4. 4
    Passed Senate
  5. 5
    To Executive
  6. 6
    Enacted

This bill died with 118th Congress. It reached “In Committee” and never advanced before the session ended, so it can no longer move — a new version would have to be reintroduced in the current session.

This bill is no longer active — its legislative session has ended, so there are no live odds of enactment. It would have to be reintroduced in the current session to move again.

Summary

To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.

Bill Text

What changed in the latest version

37 added · 3 removed

Plain-language change summary

The updated version of the bill HR 620 now includes a list of additional sponsors, signifying broader support for the bill. This change provides more visibility and indicates that more representatives align with the bill's objectives. The earlier version did not have this expanded list, which could affect how the bill is perceived in terms of support among lawmakers.

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620 Introduced in House (IH)] <DOC> 118th CONGRESS 1st Session H.
620 Reported in House (RH)] <DOC> Union Calendar No.
442 118th CONGRESS 2d Session H.
620 To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.
620 [Report No.
118-531] To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.
which was referred to the Committee on Energy and Commerce _______________________________________________________________________ A BILL To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.
which was referred to the Committee on Energy and Commerce May 31, 2024 Additional sponsors:
Mr.
Crow, Mr.
Cole, Mr.
Garamendi, Mr.
Cuellar, Mr.
Phillips, Mr.
Huffman, Mr.
Ruppersberger, Mr.
Pocan, Ms.
Salazar, Mr.
Cartwright, Mr.
Blumenauer, Mr.
Fitzpatrick, Ms.
Ross, Mr.
Levin, Ms.
Sherrill, Ms.
Craig, Mr.
Kim of New Jersey, Mr.
Kilmer, Mr.
Johnson of Georgia, Mr.
Harder of California, Mr.
Keating, Mrs.
Foushee, Mrs.
Trahan, Mr.
Van Drew, Mr.
Lawler, Mr.
Magaziner, Mr.
Rutherford, Mr.
Connolly, Mr.
Mullin, Mr.
Khanna, Ms.
Crockett, Ms.
Norton, Ms.
Lee of California, Mr.
Posey, Mrs.
Show all 111 changed rows (71 more)
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Latest
Peltola, Ms.
Lee of Florida, Mr.
Moskowitz, Mr.
Himes, Mr.
Torres of New York, Mr.
Molinaro, Mr.
Langworthy, Mr.
Stauber, Mr.
Buchanan, Mr.
Neguse, Mr.
Vicente Gonzalez of Texas, Ms.
Sewell, Mr.
Gottheimer, Mr.
Panetta, Ms.
Lofgren, Mr.
Pappas, Mr.
Swalwell, Mrs.
Kiggans of Virginia, Mr.
Bera, Mrs.
Cherfilus-McCormick, Mrs.
Kim of California, Ms.
Spanberger, Mr.
Thanedar, Ms.
Adams, Ms.
Pettersen, Mr.
Allred, Mr.
Jackson of North Carolina, Ms.
Tlaib, Mr.
Landsman, Mr.
Pascrell, Mr.
Cohen, Ms.
Wilson of Florida, Mr.
Ryan, Ms.
Jayapal, Mr.
Thompson of California, Ms.
Stevens, Mr.
Nadler, Mr.
Doggett, Mrs.
Miller of West Virginia, Ms.
Tokuda, Ms.
Stansbury, Mr.
Duncan, Mr.
Steube, Mr.
Reschenthaler, Ms.
Castor of Florida, Mr.
Davis of Illinois, Mr.
Carter of Louisiana, Ms.
Wild, Mr.
Norcross, Ms.
Houlahan, Mr.
Bowman, Mr.
Kustoff, Mr.
Bishop of Georgia, Mrs.
Hayes, Ms.
Williams of Georgia, Mr.
Jackson of Illinois, Mr.
Moulton, Mr.
Fleischmann, Mr.
Lamborn, Mr.
LaLota, Mr.
Kean of New Jersey, Ms.
McCollum, Mr.
Wilson of South Carolina, Ms.
Kuster, and Mr.
Carson May 31, 2024 Committed to the Committee of the Whole House on the State of the Union and ordered to be printed _______________________________________________________________________ A BILL To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.
<all>
Union Calendar No.
442 118th CONGRESS 2d Session H.
R.
620 [Report No.
118-531] _______________________________________________________________________ A BILL To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.
_______________________________________________________________________ May 31, 2024 Committed to the Committee of the Whole House on the State of the Union and ordered to be printed
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What Congress says this changes

H. Rept. 118-531

Published by the reporting committee Not generated — this is the committee's own “Changes in Existing Law Made by the Bill, as Reported”.

Text to be removed appears in [brackets]. Newly inserted text is italicised in the official report and cannot be marked in this plain-text rendition — read the official PDF ↗ for the authoritative formatting. 

changes in existing law made by 
the bill, as reported, are shown as follows (existing law 
proposed to be omitted is enclosed in black brackets, new 
matter is printed in italics, and existing law in which no 
change is proposed is shown in roman):

 NATIONAL ALZHEIMER'S PROJECT ACT

 * * * * * * *
SEC. 2. THE NATIONAL ALZHEIMER'S PROJECT.

 (a) Definition of Alzheimer's.--In this Act, the term 
``Alzheimer's'' means Alzheimer's disease and related 
dementias.
 (b) Establishment.--There is established in the Office of the 
Secretary of Health and Human Services the National Alzheimer's 
Project (referred to in this Act as the ``Project'').
 (c) Purpose of the Project.--The Secretary of Health and 
Human Services, or the Secretary's designee, shall--
 (1) be responsible for the creation and maintenance 
 of an integrated national plan to overcome Alzheimer's;
 (2) provide information and coordination of 
 Alzheimer's research and services across all Federal 
 agencies;
 (3) accelerate the development of treatments that 
 would prevent, halt, or reverse the course of 
 Alzheimer's;
 (4) improve the--
 (A) early diagnosis of Alzheimer's disease; 
 and
 (B) coordination of the care and treatment of 
 citizens with Alzheimer's;
 (5) ensure the inclusion of ethnic and racial 
 populations at higher risk for Alzheimer's or least 
 likely to receive care, in clinical, research, and 
 service efforts with the purpose of decreasing health 
 disparities in Alzheimer's; and
 (6) coordinate with international bodies to integrate 
 and inform the fight against Alzheimer's globally.
 (d) Duties of the Secretary.--
 (1) In general.--The Secretary of Health and Human 
 Services, or the Secretary's designee, shall--
 (A) oversee the creation and updating of the 
 national plan described in paragraph (2); and
 (B) use discretionary authority to evaluate 
 all Federal programs around Alzheimer's, 
 including budget requests and approvals.
 (2) National plan.--The Secretary of Health and Human 
 Services, or the Secretary's designee, shall carry out 
 an annual assessment of the Nation's progress in 
 preparing for the escalating burden of Alzheimer's, 
 including both implementation steps and recommendations 
 for priority actions based on the assessment.
 (e) Advisory Council.--
 (1) In general.--There is established an Advisory 
 Council on Alzheimer's Research, Care, and Services 
 (referred to in this Act as the ``Advisory Council'').
 (2) Membership.--
 (A) Federal members.--The Advisory Council 
 shall be comprised of the following experts:
 (i) A designee of the Centers for 
 Disease Control and Prevention.
 (ii) A designee of the Administration 
 on Aging.
 (iii) A designee of the Centers for 
 Medicare & Medicaid Services.
 (iv) A designee of the Indian Health 
 Service.
 (v) A designee of the Office of the 
 Director of the National Institutes of 
 Health.
 (vi) The Surgeon General.
 (vii) A designee of the National 
 Science Foundation.
 (viii) A designee of the Department 
 of Veterans Affairs.
 (ix) A designee of the Food and Drug 
 Administration.
 (x) A designee of the Agency for 
 Healthcare Research and Quality.
 (B) Non-federal members.--In addition to the 
 members outlined in subparagraph (A), the 
 Advisory Council shall include 12 expert 
 members from outside the Federal Government, 
 which shall include--
 (i) 2 Alzheimer's patient advocates;
 (ii) 2 Alzheimer's caregivers;
 (iii) 2 health care providers;
 (iv) 2 representatives of State 
 health departments;
 (v) 2 researchers with Alzheimer's-
 related expertise in basic, 
 translational, clinical, or drug 
 development science; and
 (vi) 2 voluntary health association 
 representatives, including a national 
 Alzheimer's disease organization that 
 has demonstrated experience in 
 research, care, and patient services, 
 and a State-based advocacy organization 
 that provides services to families and 
 professionals, including information 
 and referral, support groups, care 
 consultation, education, and safety 
 services.
 (3) Meetings.--The Advisory Council shall meet 
 quarterly and such meetings shall be open to the 
 public.
 (4) Advice.--The Advisory Council shall advise the 
 Secretary of Health and Human Services, or the 
 Secretary's designee.
 (5) Annual Report.--The Advisory Council shall 
 provide to the Secretary of Health and Human Services, 
 or the Secretary's designee and Congress--
 (A) an initial evaluation of all federally 
 funded efforts in Alzheimer's research, 
 clinical care, and institutional-, home-, and 
 community-based programs and their outcomes;
 (B) initial recommendations for priority 
 actions to expand, eliminate, coordinate, or 
 condense programs based on the program's 
 performance, mission, and purpose;
 (C) initial recommendations to--
 (i) reduce the financial impact of 
 Alzheimer's on--
 (I) Medicare and other 
 federally funded programs; and
 (II) families living with 
 Alzheimer's disease; and
 (ii) improve health outcomes; and
 (D) annually thereafter, an evaluation of the 
 implementation, including outcomes, of the 
 recommendations, including priorities if 
 necessary, through an updated national plan 
 under subsection (d)(2).
 (6) Termination.--The Advisory Council shall 
 terminate on December 31, 2025.
 (f) Data Sharing.--Agencies both within the Department of 
Health and Human Services and outside of the Department that 
have data relating to Alzheimer's shall share such data with 
the Secretary of Health and Human Services, or the Secretary's 
designee, to enable the Secretary, or the Secretary's designee, 
to complete the report described in subsection (g).
 (g) Annual report.--The Secretary of Health and Human 
Services, or the Secretary's designee, shall submit to 
Congress--
 (1) an annual report that includes an evaluation of 
 all federally funded efforts in Alzheimer's research, 
 clinical care, and institutional-, home-, and 
 community-based programs and their outcomes;
 (2) an evaluation of all federally funded programs 
 based on program performance, mission, and purpose 
 related to Alzheimer's disease;
 (3) recommendations for--
 (A) priority actions based on the evaluation 
 conducted by the Secretary and the Advisory 
 Council to--
 (i) reduce the financial impact of 
 Alzheimer's on--
 (I) Medicare and other 
 federally funded programs; and
 (II) families living with 
 Alzheimer's disease; and
 (ii) improve health outcomes;
 (B) implementation steps; and
 (C) priority actions to improve the 
 prevention, diagnosis, treatment, care, 
 institutional-, home-, and community-based 
 programs of Alzheimer's disease for individuals 
 with Alzheimer's disease and their caregivers; 
 and
 (4) an annually updated national plan.
 (h) Professional Judgment Budget.--For fiscal year 2024 and 
each subsequent fiscal year, the Director of the National 
Institutes of Health shall prepare and submit, directly to the 
President for review and transmittal to Congress, after 
reasonable opportunity for comment, but without change, by the 
Secretary of Health and Human Services and the Advisory 
Council, an annual budget estimate for the initiatives of the 
National Institutes of Health pursuant to the reports and 
recommendations made under this Act, including an estimate of 
the number and type of personnel needs for the National 
Institutes of Health.
 [(h)] (i) Sunset.--The Project shall expire on December 31, 
2025.

Source: H. Rept. 118-531 · govinfo

Action History

  1. Introduced in House

  2. Introduced in House

  3. Referred to the House Committee on Energy and Commerce.

  4. Referred to the Subcommittee on Health.

  5. Subcommittee Consideration and Mark-up Session Held

  6. Forwarded by Subcommittee to Full Committee by the Yeas and Nays: 26 - 0.

  7. Committee Consideration and Mark-up Session Held

  8. Ordered to be Reported by the Yeas and Nays: 43 - 0.

  9. Reported by the Committee on Energy and Commerce. H. Rept. 118-531.

  10. Reported by the Committee on Energy and Commerce. H. Rept. 118-531.

  11. Placed on the Union Calendar, Calendar No. 442.

Sponsors

Sponsorship breakdown

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1 sponsors · 101 co-sponsors · 445 not signed on

Sponsors (1)

Co-sponsors (101)

Not signed on (445)

445 members have not signed on to this bill.

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"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.

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Frequently asked questions

What does HR 620 do?
To require an annual budget estimate for the initiatives of the National Institutes of Health pursuant to reports and recommendations made under the National Alzheimer's Project Act.
Who sponsors HR 620?
HR 620 is sponsored by Tonko, Paul (Democratic), Waters, Maxine (Democratic), Crow, Jason (Democratic), Cole, Tom (Republican), Garamendi, John (Democratic), Cuellar, Henry (Democratic), Phillips, Dean (Democratic), Huffman, Jared (Democratic), Ruppersberger, C. A. Dutch (Democratic), Pocan, Mark (Democratic), Salazar, Maria Elvira (Republican), Cartwright, Matt (Democratic), Blumenauer, Earl (Democratic), Fitzpatrick, Brian K. (Republican), Ross, Deborah K. (Democratic), Levin, Mike (Democratic), Sherrill, Mikie (Democratic), Craig, Angie (Democratic), Kim, Andy (Democratic), Kilmer, Derek (Democratic), Johnson, Henry C. "Hank" (Democratic), Harder, Josh (Democratic), Keating, William R. (Democratic), Foushee, Valerie P. (Democratic), Trahan, Lori (Democratic), Van Drew, Jefferson (Republican), Lawler, Michael (Republican), Magaziner, Seth (Democratic), Rutherford, John H. (Republican), Connolly, Gerald E. (Democratic), Mullin, Kevin (Democratic), Khanna, Ro (Democratic), Crockett, Jasmine (Democratic), Norton, Eleanor Holmes (Democratic), Lee, Barbara (Democratic), Posey, Bill (Republican), Peltola, Mary Sattler (Democratic), Lee, Laurel M. (Republican), Moskowitz, Jared (Democratic), Himes, James A. (Democratic), Torres, Ritchie (Democratic), Molinaro, Marcus J. (Republican), Langworthy, Nicholas A. (Republican), Stauber, Pete (Republican), Buchanan, Vern (Republican), Neguse, Joe (Democratic), Gonzalez, Vicente (Democratic), Sewell, Terri A. (Democratic), Gottheimer, Josh (Democratic), Panetta, Jimmy (Democratic), Lofgren, Zoe (Democratic), Pappas, Chris (Democratic), Swalwell, Eric (Democratic), Kiggans, Jennifer A. (Republican), Bera, Ami (Democratic), Cherfilus-McCormick, Sheila (Democratic), Kim, Young (Republican), Spanberger, Abigail Davis (Democratic), Thanedar, Shri (Democratic), Adams, Alma S. (Democratic), Pettersen, Brittany (Democratic), Allred, Colin Z. (Democratic), Jackson, Jeff (Democratic), Tlaib, Rashida (Democratic), Landsman, Greg (Democratic), Pascrell, Bill (Democratic), Cohen, Steve (Democratic), Wilson, Frederica S. (Democratic), Ryan, Patrick (Democratic), Jayapal, Pramila (Democratic), Thompson, Mike (Democratic), Stevens, Haley M. (Democratic), Nadler, Jerrold (Democratic), Doggett, Lloyd (Democratic), Miller, Carol D. (Republican), Tokuda, Jill N. (Democratic), Stansbury, Melanie A. (Democratic), Duncan, Jeff (Republican), Steube, W. Gregory (Republican), Reschenthaler, Guy (Republican), Castor, Kathy (Democratic), Davis, Danny K. (Democratic), Carter, Troy A. (Democratic), Wild, Susan (Democratic), Norcross, Donald (Democratic), Houlahan, Chrissy (Democratic), Bowman, Jamaal (Democratic), Kustoff, David (Republican), Bishop, Sanford D. (Democratic), Hayes, Jahana (Democratic), Williams, Nikema (Democratic), Jackson, Jonathan L. (Democratic), Moulton, Seth (Democratic), Fleischmann, Charles J. "Chuck" (Republican), Lamborn, Doug (Republican), LaLota, Nick (Republican), Kean, Thomas H. (Republican), McCollum, Betty (Democratic), Wilson, Joe (Republican), Kuster, Ann M. (Democratic), Carson, André (Democratic), and Smith, Christopher H. (Republican).
What is the current status of HR 620?
This bill died with 118th Congress. It reached “In Committee” and never advanced before the session ended, so it can no longer move — a new version would have to be reintroduced in the current session.
Where can I track HR 620?
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