HB 4576 — RARE DISEASE COMMISSION
Last action — Public Act . . . . . . . . . 99-0773
No card. One bill, free forever — alerts when it moves.
-
✓Introduced
-
✓In Committee
-
✓Passed House
-
✓Passed Senate
-
✓To Executive
-
6Enacted
This bill has been enacted into law. Introduced January 28, 2016. Enacted.
Prognosis
Where this bill stands today.
Odds of enactment
HighHow often bills like it became law.
-
Enacted
Current position in the legislative process.
-
4 sponsors
0 primary, 4 co-sponsors signed on.
-
Single-party support
Sponsorship is currently within one party (1 D).
-
Cleared a recorded vote
Passed 4 recorded votes so far.
Prognosis reads this bill's own signals — stage, sponsorship breadth, committee status, recorded votes and cross-state momentum. Odds come from a model trained on which bills have become law.
Summary
Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017.
Bill Text
What changed in the latest version
51 added · 55 removedPlain-language change summary
The recent changes to Bill HB 4576 establish that all members of the Commission will now be appointed for a uniform three-year term, instead of having varied initial terms of one to three years. This simplifies the process and ensures that all members operate under the same timeline. Additionally, while members will not receive compensation for their services, they will be reimbursed for actual expenses incurred, which was clarified in the previous version. These adjustments aim to create a more consistent and fair framework for Commission appointments and operations.
HB4576 EngrossedEnrolled LRB099 17088 MJP 41446 b AN ACT concerning health.
HB4576 EngrossedEnrolled - 2 - LRB099 17088 MJP 41446 b (1) Eleven members shall be appointed by the Governor from residents of the State whose position, knowledge, or experience enables them to reasonably represent the concerns, needs, and recommendations of those with rare diseases, including physicians or health care providers who treat patients with rare diseases.
The Vice-Chairperson of the Commission shall be elected from the Commission's membership by a simple majority vote of the total membership of the HB4576 EngrossedEnrolled - 3 - LRB099 17088 MJP 41446 b Commission.
(e) OfAll the initial members appointed by the Governor, 3 shall be appointed tofor terms of one year, 4 shall be appointed to terms of 2 years, and 4 shall be appointed to terms of 3 years.
Thereafter, all members shall be appointed for terms of 3 years.
Initial members' terms of office shall be chosen by lot at the initial meeting of the Commission.
(g) MembersTotal shallmembership notof receivethe compensationCommission forconsists theirof services,the butnumber shallof bemembers reimbursedserving foron theirthe actualCommission expensesnot incurredincluding inany thevacant performancepositions. of their duties.
(h)A Totalquorum membershipshall consist of thea Commissionsimple consistsmajority of total membership and shall be sufficient to conduct the numbertransaction of membersbusiness servingof on the CommissionCommission, notunless includingstipulated anyotherwise vacantin positions.the by-laws of the Commission.
A(h) quorumThe shallCommission consist of a simple majority of total membership and shall bemeet sufficientat toleast conductquarterly. the transaction of business of the Commission, unless stipulated HB4576 Engrossed - 4 - LRB099 17088 MJP 41446 b otherwise in the by-laws of the Commission.
(j) The Commission shall meet at least quarterly.
The Commission shall make recommendations to the General Assembly, in the form of an annual report,report through 2020, regarding:
(1) the use of prescription drugs and innovative HB4576 Enrolled - 4 - LRB099 17088 MJP 41446 b therapies for children and adults with rare diseases, and specific subpopulations of children or adults with rare diseases, as appropriate, together with recommendations on the ways in which this information should be used in specific State programs that (A) provide assistance or health care coverage to individuals with rare diseases or broader populations that include individuals with rare diseases, or (B) have responsibilities associated with promoting the quality of care for individuals with rare diseases or broader populations that include individuals with rare diseases;
(3) in coordination with the Genetic and Metabolic Diseases Advisory Committee, the screening of newborn children for the presence of genetic disorders;
HB4576 Engrossed - 5 - LRB099 17088 MJP 41446 b Section 20.
Section 90.
Repeal.
This Act is repealed on January 1, HB4576 Enrolled - 5 - LRB099 17088 MJP 41446 b 2020.
Action History
-
Public Act . . . . . . . . . 99-0773
-
Effective Date January 1, 2017
-
Governor Approved
-
Sent to the Governor
-
Passed Both Houses
-
House Concurs
-
Senate Floor Amendment No. 2 House Concurs 102-014-000
-
Senate Committee Amendment No. 1 House Concurs 102-014-000
-
Added Co-Sponsor Rep. Marcus C. Evans, Jr.
-
Senate Floor Amendment No. 2 Motion to Concur Recommends Be Adopted Human Services Committee; 008-005-000
-
Senate Committee Amendment No. 1 Motion to Concur Recommends Be Adopted Human Services Committee; 008-004-000
-
Senate Floor Amendment No. 2 Motion to Concur Rules Referred to Human Services Committee
-
Senate Committee Amendment No. 1 Motion to Concur Rules Referred to Human Services Committee
-
Senate Floor Amendment No. 2 Motion to Concur Referred to Rules Committee
-
Senate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee
-
Senate Floor Amendment No. 2 Motion Filed Concur Rep. Sonya M. Harper
-
Senate Committee Amendment No. 1 Motion Filed Concur Rep. Sonya M. Harper
-
Placed on Calendar Order of Concurrence Senate Amendment(s) 1, 2
-
Arrived in House
-
Third Reading - Passed; 054-000-000
-
Placed on Calendar Order of 3rd Reading
-
Senate Floor Amendment No. 2 Adopted; Mulroe
-
Recalled to Second Reading
-
Senate Floor Amendment No. 2 Recommend Do Adopt Public Health; 005-000-000
-
Senate Floor Amendment No. 2 Assignments Refers to Public Health
-
Placed on Calendar Order of 3rd Reading May 18, 2016
-
Second Reading
-
Added as Alternate Chief Co-Sponsor Sen. Donne E. Trotter
-
Senate Floor Amendment No. 2 Referred to Assignments
-
Senate Floor Amendment No. 2 Filed with Secretary by Sen. John G. Mulroe
-
Placed on Calendar Order of 2nd Reading May 12, 2016
-
Do Pass as Amended Public Health; 008-000-000
-
Added as Alternate Co-Sponsor Sen. Jason A. Barickman
-
Senate Committee Amendment No. 1 Adopted
-
Senate Committee Amendment No. 1 Assignments Refers to Public Health
-
Senate Committee Amendment No. 1 Referred to Assignments
-
Senate Committee Amendment No. 1 Filed with Secretary by Sen. John G. Mulroe
-
Postponed - Public Health
-
Assigned to Public Health
-
Added as Alternate Co-Sponsor Sen. Terry Link
-
Added as Alternate Chief Co-Sponsor Sen. Jacqueline Y. Collins
-
Added as Alternate Co-Sponsor Sen. Andy Manar
-
Referred to Assignments
-
First Reading
-
Added as Alternate Chief Co-Sponsor Sen. Ira I. Silverstein
-
Added as Alternate Chief Co-Sponsor Sen. Linda Holmes
-
Chief Senate Sponsor Sen. John G. Mulroe
-
Placed on Calendar Order of First Reading
-
Arrive in Senate
-
Added Co-Sponsor Rep. Camille Y. Lilly
-
Added Co-Sponsor Rep. Kenneth Dunkin
-
Added Co-Sponsor Rep. Cynthia Soto
-
Third Reading - Standard Debate - Passed 073-040-000
-
Placed on Calendar Order of 3rd Reading - Standard Debate
-
Second Reading - Standard Debate
-
Added Co-Sponsor Rep. Carol Ammons
-
Placed on Calendar 2nd Reading - Standard Debate
-
Do Pass as Amended / Standard Debate Human Services Committee; 008-006-000
-
House Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote
-
House Committee Amendment No. 1 Rules Refers to Human Services Committee
-
House Committee Amendment No. 1 Referred to Rules Committee
-
House Committee Amendment No. 1 Filed with Clerk by Rep. Sonya M. Harper
-
Assigned to Human Services Committee
-
Added Co-Sponsor Rep. Al Riley
-
Added Co-Sponsor Rep. Stephanie A. Kifowit
-
Added Chief Co-Sponsor Rep. John D. Anthony
-
Added Co-Sponsor Rep. Kathleen Willis
-
Added Co-Sponsor Rep. Robert Martwick
-
Added Co-Sponsor Rep. Michael J. Zalewski
-
Added Co-Sponsor Rep. Monique D. Davis
-
Referred to Rules Committee
-
First Reading
-
Added Chief Co-Sponsor Rep. Litesa E. Wallace
-
Chief Co-Sponsor Changed to Rep. Mary E. Flowers
-
Chief Co-Sponsor Changed to Rep. Litesa E. Wallace
-
Added Chief Co-Sponsor Rep. Mary E. Flowers
-
Filed with the Clerk by Rep. Sonya M. Harper
Sponsors
- Sonya M. Harper · Cosponsor
- Andy Manar · Cosponsor
- Terry Link · Cosponsor
- Jason A. Barickman · Cosponsor
Sponsorship breakdown
Export CSV (upgrade) →0 sponsors · 4 co-sponsors · 179 not signed on · 7 voted No
Sponsors (0)
None.
Co-sponsors (4)
- Sonya M. Harper Democrat
- Andy Manar
- Terry Link
- Jason A. Barickman
Not signed on (179)
179 members have not signed on to this bill.
Show all 179 →"Not signed on" means a member has not sponsored or co-sponsored this bill — it does not imply opposition. Members flagged Voted No have a recorded No vote on this bill.
Votes
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 71 | 10 | 0 | 2 |
| Democrat | 28 | 1 | 0 | 0 |
| Republican | 3 | 3 | 0 | 0 |
| Total | 102 | 14 | 0 | 2 |
| % of votes cast | 86% | 12% | 0% | 2% |
How each member voted (118)
| Member | Party | Vote |
|---|---|---|
| Sandack | — | Yea |
| Skoog | — | Yea |
| Smiddy | — | Yea |
| Acevedo | — | Yea |
| Andersson | — | Yea |
| Anthony | — | Yea |
| Arroyo | — | Yea |
| Batinick | — | Nay |
| Beiser | — | Yea |
| Bellock | — | Nay |
| Bourne | — | Yea |
| Breen | — | Yea |
| Brown | — | Yea |
| Butler | — | Yea |
| McAsey | — | Yea |
| Franks | — | Not Voting |
| Ives | — | Yea |
| Jesiel | — | Nay |
| Jimenez | — | Yea |
| Lang | — | Yea |
| Leitch | — | Yea |
| Jones | — | Yea |
| McAuliffe | — | Yea |
| McSweeney | — | Yea |
| Sente | — | Yea |
| Soto | — | Yea |
| Bennett | — | Yea |
| Sullivan | — | Yea |
| Tabares | — | Yea |
| Thapedi | — | Yea |
| Tryon | — | Yea |
| Bradley | — | Yea |
| Turner | — | Yea |
| Brady | — | Yea |
| Unes | — | Yea |
| Mitchell, Bill | — | Yea |
| Mitchell, Christian | — | Yea |
| Drury | — | Yea |
| Dunkin | — | Yea |
| Durkin | — | Yea |
| Flowers | — | Yea |
| Fortner | — | Yea |
| Frese | — | Yea |
| Kay | — | Yea |
| Madigan | — | Yea |
| McDermed | — | Nay |
| Burke, Daniel | — | Yea |
| Burke, Kelly | — | Yea |
| Moffitt | — | Yea |
| Harris, David | — | Yea |
| Wheeler, Barbara | — | Yea |
| Harris, Gregory | — | Yea |
| Williams | — | Yea |
| Hernandez | — | Yea |
| Phelps | — | Yea |
| Phillips | — | Yea |
| Sommer | — | Nay |
| Stewart | — | Nay |
| Verschoore | — | Yea |
| Wallace | — | Yea |
| Wehrli | — | Yea |
| Willis | — | Yea |
| Winger | — | Yea |
| Yingling | — | Yea |
| Zalewski | — | Yea |
| Wheeler, Keith | — | Nay |
| Davis, Monique | — | Not Voting |
| Cavaletto | — | Nay |
| Cloonen | — | Yea |
| Conroy | — | Yea |
| Costello | — | Yea |
| Currie | — | Yea |
| D'Amico | — | Yea |
| Demmer | — | Nay |
| Hays | — | Yea |
| Hurley | — | Yea |
| Jackson | — | Yea |
| Nekritz | — | Yea |
| Pritchard | — | Yea |
| Reaves-Harris | — | Yea |
| Reis | — | Nay |
| Riley | — | Yea |
| Chapa LaVia | — | Yea |
| Anna Moeller | Democrat | Yea |
| Anthony DeLuca | Democrat | Yea |
| Camille Y. Lilly | Democrat | Yea |
| Carol Ammons | Democrat | Yea |
| Elgie R. Sims, Jr. | Democrat | Yea |
| Emanuel "Chris" Welch | Democrat | Yea |
| Fred Crespo | Democrat | Yea |
| Jaime M. Andrade, Jr. | Democrat | Yea |
| Jay Hoffman | Democrat | Yea |
| Jehan Gordon-Booth | Democrat | Yea |
| Julie A. Morrison | Democrat | Nay |
| Kelly M. Cassidy | Democrat | Yea |
| La Shawn K. Ford | Democrat | Yea |
| Laura Fine | Democrat | Yea |
| Lawrence "Larry" Walsh, Jr. | Democrat | Yea |
| Marcus C. Evans, Jr. | Democrat | Yea |
| Martin J. Moylan | Democrat | Yea |
| Michelle Mussman | Democrat | Yea |
| Natalie A. Manley | Democrat | Yea |
| Rita Mayfield | Democrat | Yea |
| Robert "Bob" Rita | Democrat | Yea |
| Robert F. Martwick | Democrat | Yea |
| Robyn Gabel | Democrat | Yea |
| Sara Feigenholtz | Democrat | Yea |
| Sonya M. Harper | Democrat | Yea |
| Stephanie A. Kifowit | Democrat | Yea |
| Sue Scherer | Democrat | Yea |
| Will Guzzardi | Democrat | Yea |
| William "Will" Davis | Democrat | Yea |
| Charles Meier | Republican | Yea |
| Christopher "C.D." Davidsmeyer | Republican | Yea |
| Joe C. Sosnowski | Republican | Yea |
| John M. Cabello | Republican | Nay |
| Norine K. Hammond | Republican | Nay |
| Terri Bryant | Republican | Nay |
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 71 | 10 | 0 | 2 |
| Democrat | 28 | 1 | 0 | 0 |
| Republican | 3 | 3 | 0 | 0 |
| Total | 102 | 14 | 0 | 2 |
| % of votes cast | 86% | 12% | 0% | 2% |
How each member voted (118)
| Member | Party | Vote |
|---|---|---|
| Sandack | — | Yea |
| Acevedo | — | Yea |
| Andersson | — | Yea |
| Anthony | — | Yea |
| Arroyo | — | Yea |
| Batinick | — | Nay |
| Beiser | — | Yea |
| Bellock | — | Nay |
| Bourne | — | Yea |
| Breen | — | Yea |
| Brown | — | Yea |
| Butler | — | Yea |
| McAsey | — | Yea |
| Ives | — | Yea |
| Jesiel | — | Nay |
| Jimenez | — | Yea |
| Lang | — | Yea |
| Leitch | — | Yea |
| McAuliffe | — | Yea |
| McSweeney | — | Yea |
| Sente | — | Yea |
| Skoog | — | Yea |
| Jones | — | Yea |
| Smiddy | — | Yea |
| Soto | — | Yea |
| Tabares | — | Yea |
| Thapedi | — | Yea |
| Tryon | — | Yea |
| Bennett | — | Yea |
| Sullivan | — | Yea |
| Bradley | — | Yea |
| Brady | — | Yea |
| Drury | — | Yea |
| Dunkin | — | Yea |
| Durkin | — | Yea |
| Flowers | — | Yea |
| Fortner | — | Yea |
| Madigan | — | Yea |
| Mitchell, Bill | — | Yea |
| McDermed | — | Nay |
| Mitchell, Christian | — | Yea |
| Moffitt | — | Yea |
| Burke, Daniel | — | Yea |
| Burke, Kelly | — | Yea |
| Phillips | — | Yea |
| Harris, David | — | Yea |
| Sommer | — | Nay |
| Wheeler, Barbara | — | Yea |
| Harris, Gregory | — | Yea |
| Stewart | — | Nay |
| Turner | — | Yea |
| Williams | — | Yea |
| Hernandez | — | Yea |
| Unes | — | Yea |
| Verschoore | — | Yea |
| Wallace | — | Yea |
| Wehrli | — | Yea |
| Willis | — | Yea |
| Winger | — | Yea |
| Yingling | — | Yea |
| Zalewski | — | Yea |
| Wheeler, Keith | — | Nay |
| Davis, Monique | — | Not Voting |
| Cavaletto | — | Nay |
| Cloonen | — | Yea |
| Conroy | — | Yea |
| Costello | — | Yea |
| Currie | — | Yea |
| D'Amico | — | Yea |
| Demmer | — | Nay |
| Franks | — | Not Voting |
| Frese | — | Yea |
| Hays | — | Yea |
| Hurley | — | Yea |
| Jackson | — | Yea |
| Nekritz | — | Yea |
| Kay | — | Yea |
| Phelps | — | Yea |
| Pritchard | — | Yea |
| Reaves-Harris | — | Yea |
| Reis | — | Nay |
| Riley | — | Yea |
| Chapa LaVia | — | Yea |
| Anna Moeller | Democrat | Yea |
| Anthony DeLuca | Democrat | Yea |
| Camille Y. Lilly | Democrat | Yea |
| Carol Ammons | Democrat | Yea |
| Elgie R. Sims, Jr. | Democrat | Yea |
| Emanuel "Chris" Welch | Democrat | Yea |
| Fred Crespo | Democrat | Yea |
| Jaime M. Andrade, Jr. | Democrat | Yea |
| Jay Hoffman | Democrat | Yea |
| Jehan Gordon-Booth | Democrat | Yea |
| Julie A. Morrison | Democrat | Nay |
| Kelly M. Cassidy | Democrat | Yea |
| La Shawn K. Ford | Democrat | Yea |
| Laura Fine | Democrat | Yea |
| Lawrence "Larry" Walsh, Jr. | Democrat | Yea |
| Marcus C. Evans, Jr. | Democrat | Yea |
| Martin J. Moylan | Democrat | Yea |
| Michelle Mussman | Democrat | Yea |
| Natalie A. Manley | Democrat | Yea |
| Rita Mayfield | Democrat | Yea |
| Robert "Bob" Rita | Democrat | Yea |
| Robert F. Martwick | Democrat | Yea |
| Robyn Gabel | Democrat | Yea |
| Sara Feigenholtz | Democrat | Yea |
| Sonya M. Harper | Democrat | Yea |
| Stephanie A. Kifowit | Democrat | Yea |
| Sue Scherer | Democrat | Yea |
| Will Guzzardi | Democrat | Yea |
| William "Will" Davis | Democrat | Yea |
| Charles Meier | Republican | Yea |
| Christopher "C.D." Davidsmeyer | Republican | Yea |
| Joe C. Sosnowski | Republican | Yea |
| John M. Cabello | Republican | Nay |
| Norine K. Hammond | Republican | Nay |
| Terri Bryant | Republican | Nay |
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 36 | 0 | 0 | 3 |
| Republican | 6 | 0 | 0 | 0 |
| Democrat | 12 | 0 | 0 | 2 |
| Total | 54 | 0 | 0 | 5 |
| % of votes cast | 92% | 0% | 0% | 8% |
How each member voted (59)
| Member | Party | Vote |
|---|---|---|
| Sandoval | — | Yea |
| Althoff | — | Yea |
| Barickman | — | Yea |
| Bertino-Tarrant | — | Yea |
| Biss | — | Yea |
| Bivins | — | Yea |
| Bush | — | Yea |
| McConnaughay | — | Yea |
| Mulroe | — | Yea |
| Haine | — | Yea |
| Hutchinson | — | Yea |
| Martinez | — | Yea |
| McCann | — | Yea |
| McCarter | — | Yea |
| Forby | — | Yea |
| Bennett | — | Yea |
| Landek | — | Yea |
| McGuire | — | Yea |
| Link | — | Yea |
| Luechtefeld | — | Not Voting |
| Manar | — | Yea |
| Brady | — | Yea |
| Sullivan | — | Yea |
| Muñoz | — | Yea |
| Cullerton, T. | — | Yea |
| Cullerton | — | Yea |
| Harris | — | Not Voting |
| Nybo | — | Yea |
| Radogno | — | Yea |
| Silverstein | — | Yea |
| Steans | — | Yea |
| Trotter | — | Yea |
| Clayborne | — | Not Voting |
| Connelly | — | Yea |
| Noland | — | Yea |
| Oberweis | — | Yea |
| Raoul | — | Yea |
| Righter | — | Yea |
| Van Pelt | — | Yea |
| Bill Cunningham | Democrat | Yea |
| David Koehler | Democrat | Yea |
| Don Harmon | Democrat | Yea |
| Emil Jones, III | Democrat | Yea |
| Eva-Dina Delgado | Democrat | Yea |
| Julie A. Morrison | Democrat | Yea |
| Kimberly A. Lightford | Democrat | Yea |
| Lakesia Collins | Democrat | Yea |
| Laura M. Murphy | Democrat | Yea |
| Laura M. Murphy | Democrat | Not Voting |
| Linda Holmes | Democrat | Yea |
| Mattie Hunter | Democrat | Yea |
| Michael E. Hastings | Democrat | Yea |
| Steve Stadelman | Democrat | Not Voting |
| Chapin Rose | Republican | Yea |
| Dan McConchie | Republican | Yea |
| Dave Syverson | Republican | Yea |
| Neil Anderson | Republican | Yea |
| Sue Rezin | Republican | Yea |
| Travis Weaver | Republican | Yea |
| Party | Yea | Nay | Present | Not Voting |
|---|---|---|---|---|
| Unaffiliated | 45 | 33 | 0 | 5 |
| Democrat | 28 | 1 | 0 | 0 |
| Republican | 0 | 6 | 0 | 0 |
| Total | 73 | 40 | 0 | 5 |
| % of votes cast | 62% | 34% | 0% | 4% |
How each member voted (118)
| Member | Party | Vote |
|---|---|---|
| Sandack | — | Nay |
| Sente | — | Yea |
| Skoog | — | Yea |
| Smiddy | — | Yea |
| Yingling | — | Yea |
| Acevedo | — | Yea |
| Andersson | — | Nay |
| Anthony | — | Nay |
| Arroyo | — | Yea |
| Batinick | — | Nay |
| Beiser | — | Yea |
| Bellock | — | Nay |
| Bourne | — | Nay |
| Breen | — | Yea |
| Brown | — | Nay |
| McAsey | — | Yea |
| McDermed | — | Nay |
| Moffitt | — | Nay |
| Jimenez | — | Yea |
| Lang | — | Yea |
| Leitch | — | Yea |
| Nekritz | — | Yea |
| Soto | — | Yea |
| Tabares | — | Yea |
| Thapedi | — | Yea |
| Tryon | — | Yea |
| Turner | — | Yea |
| Bradley | — | Yea |
| Verschoore | — | Yea |
| Mitchell, Christian | — | Yea |
| Wallace | — | Yea |
| Burke, Daniel | — | Yea |
| Wehrli | — | Yea |
| Burke, Kelly | — | Yea |
| Willis | — | Yea |
| Harris, Gregory | — | Yea |
| Williams | — | Yea |
| Hernandez | — | Yea |
| Butler | — | Yea |
| Cloonen | — | Yea |
| Conroy | — | Yea |
| Costello | — | Yea |
| Drury | — | Yea |
| Dunkin | — | Yea |
| Flowers | — | Yea |
| Hurley | — | Yea |
| Madigan | — | Yea |
| McAuliffe | — | Not Voting |
| McSweeney | — | Nay |
| Bennett | — | Nay |
| Sullivan | — | Nay |
| Sommer | — | Nay |
| Brady | — | Nay |
| Mitchell, Bill | — | Nay |
| Stewart | — | Nay |
| Unes | — | Nay |
| Winger | — | Nay |
| Zalewski | — | Yea |
| Harris, David | — | Nay |
| Wheeler, Barbara | — | Nay |
| Wheeler, Keith | — | Nay |
| Jones | — | Not Voting |
| Davis, Monique | — | Not Voting |
| Cavaletto | — | Nay |
| Currie | — | Yea |
| D'Amico | — | Yea |
| Demmer | — | Nay |
| Durkin | — | Nay |
| Fortner | — | Nay |
| Franks | — | Nay |
| Frese | — | Nay |
| Hays | — | Not Voting |
| Ives | — | Nay |
| Jackson | — | Yea |
| Jesiel | — | Nay |
| Kay | — | Nay |
| Phelps | — | Yea |
| Phillips | — | Nay |
| Pritchard | — | Nay |
| Reaves-Harris | — | Yea |
| Reis | — | Nay |
| Riley | — | Not Voting |
| Chapa LaVia | — | Yea |
| Anna Moeller | Democrat | Yea |
| Anthony DeLuca | Democrat | Yea |
| Camille Y. Lilly | Democrat | Yea |
| Carol Ammons | Democrat | Yea |
| Elgie R. Sims, Jr. | Democrat | Yea |
| Emanuel "Chris" Welch | Democrat | Yea |
| Fred Crespo | Democrat | Yea |
| Jaime M. Andrade, Jr. | Democrat | Yea |
| Jay Hoffman | Democrat | Yea |
| Jehan Gordon-Booth | Democrat | Yea |
| Julie A. Morrison | Democrat | Nay |
| Kelly M. Cassidy | Democrat | Yea |
| La Shawn K. Ford | Democrat | Yea |
| Laura Fine | Democrat | Yea |
| Lawrence "Larry" Walsh, Jr. | Democrat | Yea |
| Marcus C. Evans, Jr. | Democrat | Yea |
| Martin J. Moylan | Democrat | Yea |
| Michelle Mussman | Democrat | Yea |
| Natalie A. Manley | Democrat | Yea |
| Rita Mayfield | Democrat | Yea |
| Robert "Bob" Rita | Democrat | Yea |
| Robert F. Martwick | Democrat | Yea |
| Robyn Gabel | Democrat | Yea |
| Sara Feigenholtz | Democrat | Yea |
| Sonya M. Harper | Democrat | Yea |
| Stephanie A. Kifowit | Democrat | Yea |
| Sue Scherer | Democrat | Yea |
| Will Guzzardi | Democrat | Yea |
| William "Will" Davis | Democrat | Yea |
| Charles Meier | Republican | Nay |
| Christopher "C.D." Davidsmeyer | Republican | Nay |
| Joe C. Sosnowski | Republican | Nay |
| John M. Cabello | Republican | Nay |
| Norine K. Hammond | Republican | Nay |
| Terri Bryant | Republican | Nay |
Subjects
Frequently asked questions
- What does HB 4576 do?
- Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017.
- Who sponsors HB 4576?
- HB 4576 is sponsored by Sonya M. Harper (Democrat), Andy Manar, Terry Link, and Jason A. Barickman.
- What is the current status of HB 4576?
- This bill has been enacted into law. Introduced January 28, 2016. Enacted.
- Where can I track HB 4576?
- Track HB 4576 free on One Click Politics — get push/email alerts when it moves.
Make your voice heard on HB 4576
Find the representatives who decide this bill and tell them where you stand — for yourself, or mobilize your whole list in one click with One Click Politics advocacy software.
Stay ahead of HB 4576
Last checked for changes 3 months ago · updated continuously
One Click Politics tracks every bill in Congress and all 50 states.
Track this bill →