SR 48 — A resolution to designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month.

SR-48,MICHIGAN As Adopted by Senate, May 14, 2025 SENATE RESOLUTIONSenate NO.Resolution No.

48 Offered by Senators Johnson, Chang, Santana and Theis offeredA RESOLUTION TO DESIGNATE MAY 2025 AS EHLERS-DANLOS SYNDROME (EDS) AWARENESS MONTH WHEREAS, Ehlers-Danlos Syndrome, or EDS, is an inherited condition that affects the followingconnective resolution:tissues of the body;

Aand resolutionWHEREAS, toConnective designatetissues Mayprovide 2025support asin Ehlers-Danlosskin, Syndrometendons, (EDS)ligaments, Awarenessblood Month.vessels, internal organs, and bones;

Whereas,and Ehlers-DanlosWHEREAS, Syndrome,There orare EDS,13 istypes anof inheritedEDS conditioncaused thatby affectsgenetic defects in collagen, one of the connectivemajor tissuesstructural components of the body;

and Whereas,WHEREAS, ConnectiveSymptoms tissuesof provideEDS supportmay ininclude skin,joint tendons,hypermobility, ligaments,loose, bloodunstable vessels,joints that dislocate easily, joint pain, skin that bruises easily, digestive problems, dizziness and increased heart rate when standing up, and problems with internal organs, andamong bones;others;

and Whereas,WHEREAS, ThereEighty arepercent 13of typespeople ofwith EDS causedalso byhave geneticpostural defectsorthostatic intachycardia collagen,syndrome one(POTS); of the major structural components of the body;

and Whereas,WHEREAS, SymptomsPOTS ofoccurs EDSwhen mayan includeindividual’s jointheart hypermobility,rate loose,increases unstablevery jointsquickly thatafter dislocategetting easily,up jointfrom pain,sitting skinor thatlying bruisesdown easily,causing digestivesymptoms problems,such as dizziness andor increasedlight-headedness, heartfainting rateor whenalmost standingfainting, up,noticeable andheartbeats problems(heart withpalpitations), internalchest organs,pain, amongshortness EDSof Awareness_SR48_AA_1breath, 5cs2dzand 1shaking others;or sweating;

and Whereas,WHEREAS, EightyThose percentsuffering offrom peoplePOTS withmay EDS also have posturaladditional orthostaticmedical tachycardiaproblems syndromeincluding (POTS);digestion problems such as feeling or being sick, diarrhea, constipation, bloating and stomach pain, headaches and problems with sight such as blurred vision or tunnel vision, hands and feet looking purple, weakness and extreme tiredness and fatigue, and problems with thinking, memory, and concentration;

and Whereas,WHEREAS, POTSIt occursis whenestimated anthat individual’sthe heartprevalence rateof increasesall verytypes quicklyof afterEDS gettingcombined upaffect fromat sittingleast or1 lyingin down5,000 causingpeople symptomsworldwide suchwith asrecent dizzinessresearch orindicating light-headedness,that faintingEDS oris almostlikely fainting,under noticeablediagnosed; heartbeats (heart palpitations), chest pain, shortness of breath, and shaking or sweating;

and Whereas,WHEREAS, ThoseEDS suffering from POTS may alsosignificantly havedecrease additionalboth medicalquantity problems including digestion problems such as feeling or being sick, diarrhea, constipation, bloating and stomachquality pain,of headacheslife andfor problemsthose withaffected; sight such as blurred vision or tunnel vision, hands and feet looking purple, weakness and extreme tiredness and fatigue, and problems with thinking, memory, and concentration;

and Whereas,WHEREAS, ItCurrently, there is estimatedno thattreatment thefor prevalence of all types of EDS combinedand affectno atknown leastcure. 1 in 5,000 people worldwide with recent research indicating that EDS is likely under diagnosed;

and Whereas, EDS may significantly decrease both quantity and quality of life for those affected;

and Whereas, Currently, there is no treatment for EDS and no known cure.

and Whereas,WHEREAS, Early and accurate diagnosis can help create lifesaving medical plans and improve overall quality of life;

and Whereas,WHEREAS, A network of EDS support groups can help connect those managing life with the disease as well as better inform the health care community and the public;

now, therefore, be it ResolvedRESOLVED byBY theTHE Senate,SENATE, That the members of this legislative EDS Awareness_SR48_AA_1 5cs2dz body designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month.

EDSAdopted Awareness_SR48_AA_1by 5cs2dzthe Senate, May 14, 2025.

Secretary of the Senate