HB 76 — CONGENITAL HEART DISEASE TESTS FOR INFANTS

HOUSE CONSUMER AND PUBLIC AFFAIRS COMMITTEE SUBSTITUTE FOR HOUSE BILL 76 57TH LEGISLATURE -STATEOFNEWMEXICO- FIRST SESSION, 2025 INTRODUCED4 BY Elizabeth "Liz" Thomson 6 8 10 AN ACT RELATING TO NEWBORN INFANT HEALTH;

ADDINGCREATING ECHOCARDIOGRAMSADDITIONAL ANDCONGENITAL ELECTROCARDIOGRAMSHEART TODISEASE THESCREENING REQUIREDREQUIREMENTS TESTS FOR NEWBORN INFANTSINFANTS. WHO ARE AT HIGHER RISK OF CONGENITAL HEART DISEASE.

.228836.2.230062.3 HCPAC/HB 76 (2) 3-OH 3-CH3 glutaric aciduria;

= = 19 a l (18) maple syrup urine disease;

a l i a e r 20 (19) medium chain acyl-CoA dehydrogenase a t m m 21 deficiency;

.228836.2.230062.3 - 2 - HCPAC/HB 76 (24) sickle cell anemia;

and (b) by means of anfurther echocardiogramevaluation andif electrocardiograma ifhealth care provider determines further evaluation is necessary based on a screening that uses a standard questionnaire developed by the newborndepartment infantto hasevaluate whether a familialnewborn historyhad ofe congenitalt heart17 diseasean abnormal fetal ultrasound or ifhas eitherany ofdiagnosed thesystemic newbornor infant'sw biologicall parentsn reportd that18 they:genetic disorders associated with heart disease or a family = = 19 history of:

1) havecongenital everheart edisease; t 17 fainted, passed out or had an unexplained seizure suddenly and w l n d 18 without warning, especially during exercise;

2) havesudden evercardiac hada =l =i 19 a le exercise-relatedr chest20 paindeath or shortnessaborted sudden cardiac death in a family member under a t m m 21 the age of breath;fifty years old;

3) are i a e r 20 related to someone who has died of a heart problem or an a t m m 21 unexpected sudden death before the age of fifty, including a d r e 22 death from drowning, an unexplained car accident or sudden c e s k 23 infant death syndrome;

or 4) ared relatedr to someone with heart- e a22 nunexplained bsudden 24death relatedbefore issuesthe orage anyoneof youngerfifty; than fifty years old who has a u [ pacemaker or implantable defibrillator.

If5) aexertional facilityc lackse .228836.2s -k 323 -seizures the equipment or staffsyncope; to perform these tests, the facility shall provide to the newborn infant's parents a referral to receive an echocardiogram and electrocardiogram upon discharge.

6) first-degree relatives with an e a n b 24 implantable defibrillator;

7) first-degree relatives who have u [ been born with heart conditions or have needed surgery during .230062.3 - 3 - HCPAC/HB 76 childhood;

8) first-degree relatives with cardiomyopathies;

9) first-degree relatives with Marfan or Loeys-Dietz syndrome;

or 10) first-degree relatives with heritable pulmonary arterial hypertension.

e t 17 (4) Niemann-Pick disease;

and ew tl 17n d 18 (5) Fabry disease.

w= l= n19 d 18 C.

In determining which other congenital diseases =a =l 19i a le r 20 to screen for, the secretary shall consider the recommendations i a et rm 20m 21 of the New Mexico pediatric societysociety, [of] and the American asociety td mr me 2122 of echocardiography and the American academy of pediatrics.

dc r e 22s k 23 D.

The department shall institute and carry on such c e sa kn 23b 24 laboratory services or may contract with another agency or eu a[ n b 24 entity to provide such services as are necessary to detect the u.230062.3 [- 4 - HCPAC/HB 76 presence of congenital diseases.

.228836.2 - 4 - E.

The department shall require that all hospitals or institutions having facilities for childbirth perform or have performed screening tests for congenital diseases on all newborn infants except if the parents or guardians of a child object to the tests in writing.writing." - 5 - 12 14 16 e t 17 w l n d 18 = = 19 a l i a e r 20 a t m m 21 d r e 22 c e s k 23 e a n b 24 u [ .230062.3

G.

For the purposes of this section:

(1) "echocardiogram" means a test that uses ultrasound to detect heart defects, assess heart function and evaluate congenital anomalies;

and (2) "electrocardiogram" means a test that measures the heart's electrical activity to aid with the diagnosis of arrhythmias or other heart issues." - 5 - e t 17 w l n d 18 = = 19 a l i a e r 20 a t m m 21 d r e 22 c e s k 23 e a n b 24 u [ .228836.2