StrickenGeneral languageAssembly wouldRaised beBill deletedNo. from and underlined language would be added to present law.

State6919 ofJanuary Arkansas 95th General Assembly A Bill Regular Session, 2025 HOUSELCO BILLNo. 1302 5 By:

Representative4152 L.Referred to Committee on PUBLIC HEALTH Introduced by:

Johnson(PH) 7 For An Act To Be Entitled AN ACT TOREQUIRING ADDNEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHYDYSTROPHY. TO THE UNIVERSAL NEWBORN SCREENING ACT;

ANDBe FORit OTHERenacted PURPOSES.by the Senate and House of Representatives in General Assembly convened:

SubtitleSection TO1. ADD DUCHENNE MUSCULAR DYSTROPHY TO THE UNIVERSAL NEWBORN SCREENING ACT.

BESubsection IT(c) ENACTEDof BYsection THE19a-55 GENERALof ASSEMBLYthe OFgeneral THEstatutes STATEis OFrepealed ARKANSAS:and the following is substituted in lieu thereof (Effective July 1, 2025):

SECTION(c) 1.The Commissioner of Public Health shall publish a list of all the abnormal conditions for which the department screens newborns under the newborn screening program, which shall include, but need not be limited to, testing for (1) amino acid disorders, including phenylketonuria, organic acid disorders, fatty acid oxidation disorders, including, but not limited to, long-chain 3-hydroxyacyl CoA dehydrogenase (L-CHAD) and medium-chain acyl-CoA dehydrogenase (MCAD), hypothyroidism, galactosemia, sickle cell disease, maple syrup urine disease, homocystinuria, biotinidase deficiency, congenital adrenal hyperplasia, severe combined immunodeficiency disease, adrenoleukodystrophy, spinal muscular atrophy and any other disorder included on the recommended uniform LCO No.

Arkansas4152 Code1 § 20-15-302(a)(B)(i), concerning testing of newborn2 infantsRaised withinBill theNo. Universal Newborn Screening Act, is amended to read as follows:

(B)(i)6919 Allscreening newbornpanel infantspursuant shallto be42 testedUSC for300b-10, duchenneas muscularamended dystrophyfrom andtime coreto medicaltime, conditionsand as listedprescribed inby the recommendedCommissioner uniformof screeningPublic panelHealth, recommended[and] by(2) theon United States Secretary of Health and Humanafter Services,July in1, order2025, tocytomegalovirus, provideand appropriate(3) newbornon screeningand guidelinesafter toJuly protect1, the2027, healthDuchenne andmuscular welfaredystrophy. of newborns.

*JMB043*This 01/29/2025act 1:07:13shall PMtake JMB043effect as follows and shall amend the following sections:

Section 1 July 1, 2025 19a-55(c) Statement of Purpose:

To require newborn screening for Duchenne muscular dystrophy.

[Proposed deletions are enclosed in brackets.

Proposed additions are indicated by underline, except that when the entire text of a bill or resolution or a section of a bill or resolution is new, it is not underlined.] LCO No.

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