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34-LS0706\A HOUSE CONCURRENT RESOLUTION NO.
S T A T E O F A L A S K A THE LEGISLATURE Legislative Source Resolve No.
4 IN THE LEGISLATURE OF THE STATE OF ALASKA THIRTY-FOURTH LEGISLATURE - SECOND SESSION BY REPRESENTATIVES SADDLER, Story, Josephson Introduced:
SCS HCR 4(HSS) 37 Proclaiming May 2026 as Myositis Awareness Month.
3/24/25 Referred:
_______________ BE IT RESOLVED BY THE LEGISLATURE OF THE STATE OF ALASKA:
Health and Social Services A RESOLUTION Proclaiming May 2025 as Myositis Awareness Month.
BE IT RESOLVED BY THE LEGISLATURE OF THE STATE OF ALASKA:
and WHEREAS idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle-wasting diseases, can cause debilitating muscle inflammation, pain, fatigue, and trouble swallowing, and can result in myositis-associated interstitial lung disease;
and WHEREAS idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic autoimmune muscle-wasting diseases, can cause debilitating muscle inflammation, pain, fatigue, and trouble swallowing, and can result in myositis-associated interstitial lung disease;
and WHEREAS more research is needed to identify the causes of myositis and modes of treatments for the myositis group of diseases, including anti-melanoma differentiation- associated gene 5 dermatomyositis, antisynthetase syndrome, dermatomyositis, juvenile myositis, necrotizing autoimmune myopathy, inclusion body myositis, and polymyositis;
and WHEREAS more research is needed to identify the causes of myositis and modes of treatment for the myositis group of diseases, including anti-melanoma differentiation- associated gene 5 dermatomyositis, antisynthetase syndrome, dermatomyositis, juvenile myositis, necrotizing autoimmune myopathy, inclusion body myositis, and polymyositis;
and WHEREAS, because myositis is difficult to diagnose, treatment is often delayed and individuals who have myositis often experience difficulty finding a health care provider with expertise in the disease;
and WHEREAS, because myositis is difficult to diagnose, treatment is often delayed, and individuals who have myositis often experience difficulty finding a health care provider with expertise in the disease;
and WHEREAS individuals who suffer from myositis experience a reduced quality of life HCR004a -1- HCR 4 New Text Underlined [DELETED TEXT BRACKETED] 34-LS0706\A and a shortened life expectancy from complications related to myositis, especially those with inclusion body myositis, and no cure has been found;
and WHEREAS individuals who suffer from myositis experience a reduced quality of life -1- Enrolled HCR 4 and a shortened life expectancy from complications related to myositis, especially those with inclusion body myositis, and no cure has been found;
and WHEREAS The Myositis Association is organizing a nationwide observance of myositis awareness for the month of May 2025;
and WHEREAS The Myositis Association is organizing a nationwide observance of myositis awareness for the month of May 2026;
BE IT RESOLVED the Alaska State Legislature encourages residents of the state to come together, learn about the symptoms and types of myositis, and support individuals and families in local communities who are affected by myositis and can benefit from greater awareness of these rare diseases;
BE IT RESOLVED that the Alaska State Legislature encourages residents of the state to come together, learn about the symptoms and types of myositis, and support individuals and families in local communities who are affected by myositis and can benefit from greater awareness of these rare diseases;
and be it FURTHER RESOLVED that the Alaska State Legislature proclaims the month of May 2025 as Myositis Awareness Month.
and be it FURTHER RESOLVED that the Alaska State Legislature proclaims the month of May 2026 as Myositis Awareness Month.
HCR 4 -2- HCR004a New Text Underlined [DELETED TEXT BRACKETED]
Enrolled HCR 4 -2-
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