LCUNOFFICIAL 112COPY 326625 HouseRS ResolutionBR 5461383 thA thRESOLUTION threcognizing By:May 2025 as Myositis Awareness Month.

RepresentativesWHEREAS, Hiltonresidents of theKentucky 48,are Cooperamong ofthose theaffected 45by ,myositis Hawkinsand ofother therare 27diseases ,because Mathiaknearly of1 ndin th10 theAmericans 82have ,rare O’Steendiseases; of the 169 , and others A RESOLUTION Recognizing May 2025 as Myositis Awareness Month;

and forWHEREAS, otheridiopathic purposes.inflammatory myopathies (collectively referred to as myositis) are rare, chronic, autoimmune muscle wasting diseases;

and WHEREAS, residentsmyositis ofoften Georgiafeatures aredebilitating amongmuscle thoseinflammation affected by myositis and other raresymptoms, diseases,such as nearlypain, onefatigue, inand tentrouble Americansswallowing; have a rare disease;

and WHEREAS, idiopathicmyositis inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle-wasting diseases that often feature debilitating muscle inflammation, pain, fatigue, and difficulty swallowing and can result in myositis-associated interstitial lung disease;

and WHEREAS, more research is needed to identify the causes of and modes of treatments for myositis,the myositis group of diseases, which includesinclude anti-MDA5 autoantibody-positiveautoantibody positive myositis, antisynthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis;

and WHEREAS, myositis is difficult to diagnose, oftentreatment leadingis tooften delayeddelayed, treatment, and individuals withgenerally theexperience diseasedifficulty frequentlyfinding strugglea tohealth findcare healthcareprovider providers with expertise in their condition;

and H.WHEREAS, individuals who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, particularly for those with inclusion body myositis;

R.and WHEREAS, women and people of color with all forms of myositis experience particularly pronounced health disparities;

546and -WHEREAS, 1The -Myositis LCAssociation 112is 3266the WHEREAS,leading allinternational whopatient sufferadvocacy fromorganization myositisserving experiencethe amyositis reducedcommunity quality of life, and nofocuses cureon hasbeenfound;lifeexpectancyisoftenshortened,particularlyforthosewithinclusionbodypatient myositis,services, andeducation, womenresearch, and peoplepublic ofawareness, colortoward withits allgoal forms of myositisachieving experiencea pronouncedworld healthwithout disparities;myositis;

and WHEREAS, theThe Myositis Association is theorganizing leadinga internationalnationwide patientobservance advocacyof organizationMyositis servingAwareness theMonth myositis community, focusing on patient services, education, research, and public awareness in theMay, pursuit2025; of a world without myositis.

NOW,THEREFORE,BEITRESOLVEDBYTHEHOUSEOFREPRESENTATIVESthatNOW, THEREFORE, Page 1 of 2 XXXX 1/30/2025 12:48 PM Jacketed UNOFFICIAL COPY 25 RS BR 1383 Be it resolved by the membersHouse of thisRepresentatives bodyof recognizethe MayGeneral 2025Assembly asof Myositisthe AwarenessCommonwealth Month.of Kentucky:

BEITFURTHERRESOLVEDthattheClerkoftheHouseofRepresentativesisauthorizedSection and1. directed to make appropriate copies of this resolution available for distribution to the public and the press.

H.This honorable body hereby recognizes May 2025 as Myositis Awareness Month.

R.Section 2.

546The -Clerk 2of -the House of Representatives is directed to transmit a copy of this Resolution to Representative Kimberly Moser.

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