LCPRINTER'S 112NO. 3266 House Resolution 546 th th th By:

Representatives1669 HiltonTHE ofGENERAL theASSEMBLY 48,OF CooperPENNSYLVANIA ofSENATE theRESOLUTION 45Session , Hawkins of theNo. 27 , Mathiak of nd th the 82 , O’Steen of the 169 , and others A RESOLUTION Recognizing May 2025 as Myositis Awareness Month;

and300 for2026 otherINTRODUCED purposes.BY PHILLIPS-HILL, MARTIN, HUGHES, HAYWOOD, VOGEL, STREET AND J.

WHEREAS,WARD, residentsMAY of1, Georgia2026 areREFERRED amongTO thoseRULES affectedAND byEXECUTIVE myositisNOMINATIONS, andMAY other1, rare2026 diseases,A asRESOLUTION nearlyRecognizing onethe inmonth tenof AmericansMay have2026 aas rare"Myositis disease;Awareness Month" in Pennsylvania.

and WHEREAS, idiopathicMyositis inflammatoryis myopathies,a collectively referred to as myositis, are rare, chronic, autoimmune muscle-wastingdisease diseases that oftencauses featureinflammation debilitatingin musclethe inflammation,muscles, pain,which fatigue, and difficulty swallowing and can resultcause inprolonged myositis-associatedmuscle interstitialfatigue lungand disease;weakness;

and WHEREAS, moreThe researchdisease isencompasses neededseveral toconditions, identifyincluding the causes of and treatments for myositis, which includes anti-MDA5 autoantibody-positive myositis, antisynthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, dermatomyositis and polymyositis;

andas WHEREAS,well myositisas isinclusion difficultbody tomyositis; diagnose, often leading to delayed treatment, and individuals with the disease frequently struggle to find healthcare providers with expertise in their condition;

and H.WHEREAS, These diseases, sometimes referred to as inflammatory myopathies, can affect the internal organs, skin and multiple muscle groups of patients;

R.and WHEREAS, An estimated 75,000 people in the United States are affected by all forms of myositis;

546and -WHEREAS, 1Treatment -for LCthis 112rare 3266autoimmune WHEREAS,disease allmay whoinclude sufferboth fromnondrug myositisand experiencedrug-based atherapies, reducedincluding qualityimmunosuppressants ofor life,corticosteroids, andwhich noslow curethe hasbeenfound;lifeexpectancyisoftenshortened,particularlyforthosewithinclusionbodybody's myositis,immune andsystem women and peoplereduce ofthe colorbody's withattack allon formsits ofmuscles, myositisskin experienceand pronouncedorgans; health disparities;

and WHEREAS, thePhysical Myositistherapy Associationalso ismay thebe leadingincluded internationalas patienta advocacytreatment organizationto servinghelp improve the myositispatient's community,physical focusingactivity on patient services, education, research, and publicquality awareness in the pursuit of alife; world without myositis.

NOW,THEREFORE,BEITRESOLVEDBYTHEHOUSEOFREPRESENTATIVESthattherefore thebe membersit ofRESOLVED, thisThat bodythe Senate recognize the month of May 20252026 as Myositis"Myositis Awareness Month.Month" in Pennsylvania;

BEITFURTHERRESOLVEDthattheClerkoftheHouseofRepresentativesisauthorized and directedbe toit makefurther appropriateRESOLVED, copiesThat ofthe thisSenate resolutionraise availableawareness forand distributionsupport tothose theaffected publicby andthis therare, press.yet impactful, disease.

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