LC[Congressional 112Bills 3266119th HouseCongress] Resolution[From 546the thU.S. th th By:

RepresentativesGovernment HiltonPublishing ofOffice] the[H. 48, Cooper of the 45 , Hawkins of the 27 , Mathiak of nd th the 82 , O’Steen of the 169 , and others A RESOLUTION Recognizing May 2025 as Myositis Awareness Month;

andRes. for other purposes.

WHEREAS,277 residentsIntroduced ofin GeorgiaHouse are(IH)] among<DOC> those119th affectedCONGRESS by1st myositisSession andH. other rare diseases, as nearly one in ten Americans have a rare disease;

andRES. WHEREAS, idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle-wasting diseases that often feature debilitating muscle inflammation, pain, fatigue, and difficulty swallowing and can result in myositis-associated interstitial lung disease;

and277 WHEREAS,Supporting more research is needed to identify the causesdesignation of andMay treatments2025 foras myositis,``National whichMyositis includesAwareness anti-MDA5Month''. autoantibody-positive myositis, antisynthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis;

and_______________________________________________________________________ WHEREAS,IN myositisTHE isHOUSE difficultOF toREPRESENTATIVES diagnose,March often31, leading2025 toMr. delayed treatment, and individuals with the disease frequently struggle to find healthcare providers with expertise in their condition;

andMcCormick H.submitted the following resolution;

R.which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Supporting the designation of May 2025 as ``National Myositis Awareness Month''.

546Whereas -residents 1of -the LCUnited 112States 3266 WHEREAS, all who suffer from myositis experience a reduced quality of life,America andare noamong curethose hasbeenfound;lifeexpectancyisoftenshortened,particularlyforthosewithinclusionbodyaffected myositis,by andmyositis women and peopleother ofrare colordiseases, with allnearly forms1 ofin myositis10 experienceAmericans pronouncedhaving healthrare disparities;diseases;

andWhereas WHEREAS,idiopathic theinflammatory Myositismyopathies Association(collectively isreferred theto leadingas internationalmyositis) patientare advocacyrare, organizationchronic, servingautoimmune themuscle-wasting myositisdiseases community,that focusingoften onfeature patientdebilitating services,muscle education,inflammation research,and other symptoms, such as pain, fatigue, and publictrouble awarenessswallowing, inand thecan pursuitresult ofin amyositis- worldassociated withoutinterstitial myositis.lung disease;

NOW,THEREFORE,BEITRESOLVEDBYTHEHOUSEOFREPRESENTATIVESthatWhereas more research is needed to identify the memberscauses of thisand bodymodes recognizeof Maytreatments 2025for asthe Myositismyositis Awarenessgroup Month.of diseases, which includes anti-MDA5 autoantibody-positive myositis, antisynthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis;

BEITFURTHERRESOLVEDthattheClerkoftheHouseofRepresentativesisauthorizedWhereas andmyositis directedis difficult to makediagnose appropriatewhich copiesleads ofmyositis thispatients resolutionto availablefrequently forexperience distributiondelayed totreatment theand publicdifficulty andfinding thea press.health care provider with expertise in their condition;

H.Whereas all who suffer with myositis experience reduced quality of life, particularly since no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis, and women and people of color with all forms of myositis experience particularly pronounced health disparities;

R.and Whereas public awareness and education campaigns on myositis detection and treatment are held during the month of May:

546Now, -therefore, 2be -it Resolved, That the House of Representatives-- (1) supports the designation of ``National Myositis Awareness Month'';

(2) recognizes the importance of raising awareness about myositis and its impact on United States veterans and citizens;

and (3) encourages all people in the United States to become more informed about myositis and to support the individuals and families who are affected by these conditions.

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